Numbness in legs and torso

[vegisaurus]

Before I start, I have been to the GP and am awaiting blood results / neurology referral. I am posting to see if anyone else has been in a similar position and can offer me some hope or at least stop my worry spiralling whilst I wait for reaults!

On Wednesday, the top of my thighs felt numb and tingly, although I still had some sensation. Over the course of a couple of hours, the numbness has spread down both legs to mid calf all the way up to my mid torso. It has not become any better.

I am able to walk and have control of my bladder / bowels but the feeling is disconcerting. The GP couldn't say what could be causing it, but did say it was an atypical presentation (whatever that means). They asked for advice from neurology, but have not officially referred me.

My sister has recently been diagnosed with MS and I am worried this could be the case with me, despite having no other symptoms.

Does anyone have any experience? I am getting rather worried waiting for results and have resolved to not google after some rather scary initial search results!

I wanted to update this thread in case anyone does a search in the future and wants to know the final outcome.
My symptoms largely went away after a couple of months like the neurologist said. I have been left with mild pins and needles in both legs but it doesn't interfere with my mobility.
My MRI showed further lesions on my spine and brain that had caused no symptoms. From this I have been diagnosed with MS. I am now in the process of starting treatment with the aim of preventing future lesions occuring.
It feels a little surreal as I feel fairly healthy at the moment! There has been a lot of research and development in MS treatments in the last few years, so everyone I have spoken too has been very positive about my future.

Thank you for the update Vegisaurus - you must be reeling. I remember being devastated by my diagnosis but also oddly relieved I didn't have a brain tumour (one of the possibilities that had been racing through my head while I was waiting to find out!)

As you say - there has been so much progress in recent years that the prognosis is much better for people with MS. As I mentioned in my previous post, I have had no disease activity (ie no symptoms and no new lesions detected on my annual MRIs) for nearly 9 years.

I don't know what treatments you have been offered (I don't think Lemtrada is offered as a first line therapy any more) but I went down the route of hitting it as hard as possible (ie the intervention treatment model) vs going for the low efficacy drugs and hoping I didn't need to go for the stronger ones. That worked well for me. I remember there being so much information to digest about all the different options. I hope you have support to work through it.

Good luck with it all xx

You are so right, the prognosis is not the doom and gloom it once was! I have been offered the choice of Kesimpta or Ocrevus (which I believe are both high efficacy options). I am leaving towards Kesimpta purely for the convenience of being able to do everything at home rather than trapsing to the hospital.

Ocrevus was just coming online when I got diagnosed, I think. Kesimpta wasn't available. I just had a quick look as they both look like great options. I think neurologists are generally suggesting more aggressive treatments early on now.