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Statins - would you push for them?

57 replies

Troubler · 02/11/2025 17:51

I have high cholesterol. My dad has genetic high cholesterol (familial HC) and my mum had a heart attack when she was 66.

I recently had a blood test for work insurance and they cut back my life cover through work because my cholesterol was high.

but when I went to the GP, he said my Q risk score was low and therefore I didn’t need statins.

Is it worth trying to get them? My family who live abroad are quite horrified that I haven’t got them given all the heart issues in my family but the GP was adamant he wasn’t going to prescribe them unless I had other risk factors which apparently I don’t!

I’m guessing I would have to go private to get them as the NHS GP is adamant I don’t need them

OP posts:
dazedbutstillhere · 06/11/2025 20:45

The thing is, I think I need to take the statins or I won't live long enough to get dementia. Between a rock and a hard place. But while my heart attack was happening I was thinking I definitely don't want to die yet.

Soontobe60 · 06/11/2025 20:52

TheignT · 05/11/2025 14:30

I won't risk it, there clearly is a risk as when I contacted GP I was given an appointment for blood test within 24 hours, had to go to hospital in neighbouring town as they couldn't find an appointment fast enough at the surgery. I got calls from doctor and pharmacist. I was also in agony and don't want to risk that level of pain again.

My second blood test indicates that the damage isn't permanent but that isn't 100% yet

Damage to what?

MeridaBrave · 06/11/2025 20:56

JellyBabiesmunch · 02/11/2025 20:33

I don’t want to take them in any account. I would be interested to know what else others have tried to reduce cholesterol.

I lost weight using WLI - I lost 2 stone, BMi was 27 so only just qualified. cholesterol gone from 5.1 to 3.7 in 3 months.

waitamo · 06/11/2025 21:03

JamNittyGritty · 06/11/2025 04:19

@waitamo I have started looking into calcium CT scans, were uou able to get yours on the nhs or pay privately?

They are definitely not routine unless there is an underlying risk factor that needs to be checked. So I'd say unless you are referred it might have to be privately done.

In my case, at the same time I was in patient for the bile duct issue, it was discovered that I had Atrial Fibrillation. I was more shocked by that than the bile duct problem as I had no symptoms whatsoever! So as part of the workup for Afib the cardiologist arranged for a Calcium CT, and the high cholesterol was an added reason. All was well as I said and it was done free as an inpatient.

Afib is another long story altogether. I could write the book!

BadLuckNameChange · 06/11/2025 21:07

TwelfthOfNever · 02/11/2025 21:47

Seconding what wtftodo says, I have FH from at least three generations prior, all of whom have died in their 50s/60s of heart attacks.

People saying "oh statins are baaaad" apparently aren't capable of comparing minor side effects (if any, I don't) to being fucking dead.

With FH and a number of other illnesses, cholesterol levels are elevated by otherwise normal organ function and can't be reduced usefully by diet at all. Statins and ezetemibe may mean I'll buck the family trend and last into old age.

Edited

I don’t want to belittle the good that statins do. But please don’t belittle the bad. My grandmother died from rhabdomyolysis caused by statins, and her case and others like it are why many statins now have a black box warning in the US. It’s not just muscle cramps; she’s just as “fucking dead” as those who need statins and don’t take them - unfortunately, I understand it’s a double-edged sword. I’m not at all saying they’re not helpful or necessary in some cases, but it is a medication that can have very serious side effects and any GP must determine if risking them is worth it. Deaths like my grandmother’s have made lots of GPs more hesitant to prescribe them vs 10 years ago. The GP may be wrong in OP’s case; I agree that a second opinion is a good idea, and I really hope you find the right solution (if that’s statins or not), OP. Good luck.

waitamo · 06/11/2025 21:08

I meant to say in my previous post that it was not ME who arranged the CT, it was the hospital doc, despite him not being too concerned about my high chol. It was the Afib diagnosis that spurred things on, and I wanted one too, having looked it up!

BananaSquiggle · 06/11/2025 21:17

Troubler · 06/11/2025 17:30

I already have a GP who I can tell feels that I’m doing the ‘worried well’ thing - I had a major allergic reaction when I was travelling for work last year. The hospital that I visited recommended an allergy specialist in London and I know the waiting lists are long so I paid for it myself. When the results came through and he wrote to my GP, the GP was completely dismissive and said he wasn’t going to follow the consultant’s recommendations because he ‘didn’t have to’. Sigh.

I just don’t want a stroke or a heart attack and given the family history, it’s quite likely I’ll have one at some point!

maybe I’ll just try a private GP - I don’t know how much statins cost privately but it’s probably less than the impact on my life if I have a stroke for example.

I see red yeast rice acts as a statin but is less tested so maybe I’ll just start with that for now

thanks for all the useful advice

GPs mostly follow NICE guidance. Here’s an AI summary of what it says about prescribing statins:

Risk assessment and when to consider statins

  • In the guideline Cardiovascular disease: risk assessment and reduction, including lipid modification (NG238, 2023) NICE recommends using a 10-year cardiovascular disease (CVD) risk score (for example using QRISK3) in people without existing CVD to identify those who may benefit.
  • The threshold for offering statin treatment (primary prevention) remains at a 10-year CVD risk of 10% or more.
  • Importantly, NICE also says that for people whose risk is less than 10% over 10 years, a statin can be considered (i.e., in a shared-decision process) especially if there is concern the risk may be underestimated, or the person strongly prefers it.

Have you expressed to them already that you’d “strongly prefer” statins? And how much under 10% is your QRISK?

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