Always ill, anyone had these symptoms?

[Lunacake]

At the end of my tether with all these symptoms. I’ve been back and forth to my GP ever since my twins were born 10 months ago with a long list of ailments.

Im constantly bloated no matter what I eat, my abdomen looks wonky, fuller at the top and it feels like I’m being suffocated from the inside. A couple nights ago I had excruciating pain at the top like I was burning from the inside. Only way to make it better was to be hunched forward.

im always tired no matter how much sleep I get. I wake up feeling more tired than before I went to bed. chronic back pain and pain in my chest and below my left rib.

My legs are constantly itchy. I’ve clawed skin off some areas itching it that much. I get random periods of feeling hot and sweaty with face flushing.

Neck is always sore and feels thicker. Feel like I’m being strangled.

I’ve had a full blood count, that was fine except slightly low white blood cells that they aren’t concerned about. ANA was negative, TSH was “fine” too. I’ve had an echo and multiple ECGs for the chest pain and ectopic beats I’ve been getting.

Im sick of feeling like I have some mysterious illness that they can’t find and always feeling unwell. Anybody else had these symptoms? Thanks

Also forgot to add I’ve been getting awful pain in my legs and knees and find it hard to walk sometimes. Pain in my left wrist with tingling in my hands 😩

B12 and folate deficiency? Covers a lot of those symptoms but maybe not the beats issue. I see you’ve had full bloods, was that NHS? I think a lot of people would say anecdotally that the NHS have really low/high thresholds for certain blood results that you might not see in a private setting.
Anyway, bottom line, no one can diagnose over the internet, have you had a second opinion or is it the same Dr each time?

It could be a few things, I'm thinking maybe be Lymes disease, long COVID, fibromyalgia, IBS, chronic fatigue/ME, chronic regional pain syndrome perimenopause, functional neurological disease, coeliac. Did you have your b12 & vitamin D tested?

With the pain in your legs have they considered peripheral arterial disease? Your arteries get choked up and blood suppply lessens to your legs it can be really painful. If you are struggling with blood circulation it could affect your spleen on the left and your liver causing itching. I’d expect your blood work to be a bit interesting though. I can’t remember name of test but they check for size and shape of red blood cells to check your spleen.

I think you’d want a CAT scan with contrast to hsve a look at what is going on.

Yes it was NHS full blood count. I’ve had a test for celiac due to family history and that was fine too. I’ll ask about vitamin D and b12.

Tiredofwhataboutery I’ll enquire of this at my next appointment, I hope they don’t dismiss me due to my age (29).

If you have the blood results, I would google each test and compare your results with other countries’bands’ of acceptable. They vary hugely in some cases. For example I have Hashimoto’s disease and the acceptable levels of normal I know vary greatly between uk, and Australia where I now live

if you are looking purely for ideas at this point, because you aren’t getting answers from your medical doctor can you put all your symptoms and blood results into chatGPT and see what come back as worth exploring. I will say I’m not advocating for dr google but it sounds like you are running out of places to go.

How close is your family history of coeliacs? I know you said your results came back negative but blood screenings for coeliacs have a decent rate of false negatives. Giving birth is one of the triggers of activating coeliacs disease if you have the gene. I'd ask for an endoscopy if they'll allow it. Or ask to see your coeliac results yourself and research about the TTC score.

After I had twins I had lots of gastric symptoms and low folic acid. I had alsorts of tests (including gastroscopy and colonoscopy). After a year of back and forth to gastroenterology and gp they decided the pregnancy and breastfeeding had put my body under too much pressure it couldn't cope. My bloods/symptoms were back to normal when dt were 15 months (3 months after I stopped feeding them) so it did make sense.