MS vs Vitamin defiencies

[Lilxa89]

Hi all, has anyone worried they may have MS or was on the path of thinking it may be heading that way but turned out to be b12/folate defincies etc

No, the lesions on the brain and spine are a give away, plus the spinal tap.

As above. I've had MRIs to rule out MS.

Same here. MRI lit up like a Christmas tree.

@GarlicMetre @GreatTheCat thabks for comments. Its because I kept seeing people mention you can have MS even without the lesions on mri/normal mri. That's why I've been scared with all symptoms in having. I've had 2 mris on head/inner ears and hwad in the past year and all normal. I have regular scans on my spine but to having AS and nothing in those either other than my sacroillitis, mild degenerative changes etc x

I understood that it’s linked with vitamin D deficiency which is one reason why Scotland has the highest rate of MS sufferers in the world.

It is scary having a perplexing array of symptoms, OP. I have ME-CFS and didn't even know they were testing for MS until I got the letter from neurology. To be fair, I don't like having ME but it's better than having MS!

I gather MS damage can be missed, especially in the early stages, but they do a battery of tests not just the brain scan. The consensus seems to be that, if no lesions are found, you don't need to worry about disease progression.

MS isn't that bad, lots of medication these days.

MS is actually one thing where tgere has been huge advancement in treatment

I've been looking into it recently-not had tests or anything though. But random symptoms like some numbness/tingling and my left eyelid twitching randomly. The big one that made me think of MS is urgency to go to the toilet (despite there not being that much urine when I go) but I'd think it's more likely to be calcium or potassium deficiency.

@Whereismyjoiedevivre interesting you say this, as recently my vit d has come baxk low
First ome said 21 and last month 34. This is first time ever been tested so not sure how long they've been low for x

Glad to see several people letting you know MS isn't that bad given the incredible advances in treatment. I was diagnosed aged 20 after some shocking MRI results and a relapse left me wheelchair-bound. But it went into remission with medication, and these days nobody knows I have it unless I tell them (I'm now aged 35 and have a young son)

B12 deficiency can progress to Subacute Combined Degeneration of the Spinal Cord (SACD), which causes brain and spinal lesions. The only way to be absolutely sure of MS rather than SACD is a lumbar puncture

MS is often not visiable in this way until years or even a decade after syptoms start.

Fabulous, Magpie! My story is a lot like this except I am older than you and my lesions have reduced over the years due to fabulous advances in treatment. No one would ever guess in a million years I have MS unless I told them.

It is not the terrifying diagnosis it once was.

however OP, you clearly don’t have MS anyway according to the info in your posts.