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Anyone else experienced anything like this?

39 replies

PinkHazel · 27/06/2025 20:51

Hi, firstly sorry for the long post but I am just looking for anyone who can possibly advise me in anyway, I know this isn’t a place to get official medical advice but I am feeling like I could do with any options on this or advice from anyone who’s had similar.

Basically about a month ago I went to docs with a long standing sore throat - no other symptoms. I had this 2 months and they referred me on a 2 week appointment to get this checked. In the meantime I had a 2 week family holiday coming up. On the run up to this I would say I had various things in my life stressing me out and when I got the referral this did panic me. The appointment was arranged for after my holiday.

About a week before I went on the holiday, and a week after this GP appointment I started to feel extremely unwell. Symptoms were mainly feeling like my heart was beating really hard in my chest with tightness, feeling shakey, dizzy, sick, unable to think straight and my body just feeling really fuzzy and off. 2 days before we was due to fly, I decided to ring 111 for advice, as I had chest tightness and “palpitations” they sent me to a&e. I got various blood tests and an ECG. They advised me everything was ok and I went home, had a few hours sleep and went to work the next morning as it was my last day at work before I went off on annual leave. I felt horrific that day, I think the lack of sleep made everything worse.

Fast forward to the holiday. I didn’t feel too bad the first week, but the second week I could really feel the symptoms. I think it was easy to put the way I was feeling down to the heat and the nature of holidaying with a toddler as it wasn’t exactly relaxing. As we were on the lead up to coming home I really felt unwell again.

We got home and after two days I became very upset and worried about the symptoms I was feeling (and still am). The latest symptom feels like pain/ pressure which starts at the bottom of my back of head/neck and spreads to my whole head. Experiencing Dizziness, fatigue, feeling sick, shaking, Head / neck / arms feeling fuzzy and achey. Almost like a vibration / pulsing in my head and neck (including ears and even sinus’ at times). Tingling arms and tight chest which I can feel beating. Feeling spaced out like I’m not here (a bit like when you’re drunk). I called 111 again trying to explain my symptoms but realised it was like talking to a Robot and filling in a questionnaire (yes or no questions). The minute I mentioned my chest, the said to go to a&e again. So off I went, but when I met the first nurse she explained they were going to do the exact same tests on me again as I was down as chest pain. They said they couldn’t look at the symptoms collectively as the rest were for the GP. So I left rather than waiting 4 hours for the same results I had previously. She agreed it was the right thing to do. I went straight to my GP on the way home and asked if I could have more bloods done for stuff they didn’t check at the hospital and explained my symptoms. The receptionist booked me straight in for the following week (blood test only it wasn’t an actual appointment with the GP). I’ve had those done and got the results back the next day. Only thing reported was low iron ferritin levels of 17. I had levels of 18 two years ago and never felt like this so don’t feel I can put it down to low iron. I also had my throat appointment which was fine, I don’t even have a sore throat now.

I went back to work this week and really really struggled. For example one morning I felt ok ish.. then after my lunch I felt horrendous again so I went for a walk, when someone walked by me I felt like I was going to fall over as if my balance was off. All the same symptoms alongside this mentioned earlier in the post. Today I feel horrendous again, I rang the GP earlier to discuss all of this but they said I have to ring back next week as there was nothing available.

A lot of people have said it could be down to stress and anxiety. I am very tearful at the minute as I feel like I’m worrying so much about why I am feeling this way. But the symptoms are so real and I feel so poorly I don’t know if I can really put this down to stress/ anxiety. I do believe I have health anxiety and am wondering if I need to speak to someone about this anyway. I am ringing the GP Monday morning but I am worried I am going to be fobbed off. I feel like everyday is a struggle as I just feel so rubbish. What can the GP really do for me? What else can they look at? Has anyone ever experienced anything like this? I feel really alone as no one understands the severity of how I feel and I don’t know what to do. It’s been a month of this now. Thank you for reading :(

OP posts:
doubleshift · 27/06/2025 20:53

GP could give you one of those 24hr monitors to wear that will more effectively pick up incidents

nessiethecat · 27/06/2025 20:58

I’ve had all those symptoms apart from the sore throat and put it down to low iron. I really felt like I was slowing dying or fading away. I’ve been on iron tablets the last year and it’s improved but not resolved.

slapmyarseandcallmemary · 27/06/2025 20:59

GP told me recently the new strain of covid has been causing vertigo/dizziness in people. Is it possible you've had covid? I know it doesn't explain all your symptoms, but could explain some.

PinkHazel · 27/06/2025 21:00

slapmyarseandcallmemary · 27/06/2025 20:59

GP told me recently the new strain of covid has been causing vertigo/dizziness in people. Is it possible you've had covid? I know it doesn't explain all your symptoms, but could explain some.

I did have an awful flu before the sore throat lingered for 2 months.. whether it was covid I’m not sure but I was bed bound with it

OP posts:
ScribblingPixie · 27/06/2025 21:00

Do you get acid reflux?

Ilovelowry · 27/06/2025 21:01

I felt exactly like that when my ferritin was 17.

I took ferrous sulphate every other day for 6 months and ferritin is now over 100.

PinkHazel · 27/06/2025 21:01

nessiethecat · 27/06/2025 20:58

I’ve had all those symptoms apart from the sore throat and put it down to low iron. I really felt like I was slowing dying or fading away. I’ve been on iron tablets the last year and it’s improved but not resolved.

What was your iron level? GP said mine was low but not anemic, but like I said 2 years ago it was more or less the same but I didn’t have any of these symptoms

OP posts:
PinkHazel · 27/06/2025 21:02

ScribblingPixie · 27/06/2025 21:00

Do you get acid reflux?

I’ve considered this but unless it’s silent reflux I don’t think it’s this

OP posts:
nessiethecat · 27/06/2025 21:11

I think my iron was 24. So not dangerously low but clearly too low for me.

Ilovelowry · 27/06/2025 21:29

I got my results printed off. At 17.the hospital called it 'non anaemic iron defficiency'.

GP told me it was incredibly low and gave me TXA for periods and told me to take ferrous sulphate with vitamin C every second day. It worked miracles.

She was astonished that my ferritin had not been over 35 in the 15yrs since I had children and no one had flagged it up to me.

I had to sit down while I was on dog walks I was nearly passing out. Thought I was going to be sick in a meeting at work.

PinkHazel · 27/06/2025 21:32

Ilovelowry · 27/06/2025 21:29

I got my results printed off. At 17.the hospital called it 'non anaemic iron defficiency'.

GP told me it was incredibly low and gave me TXA for periods and told me to take ferrous sulphate with vitamin C every second day. It worked miracles.

She was astonished that my ferritin had not been over 35 in the 15yrs since I had children and no one had flagged it up to me.

I had to sit down while I was on dog walks I was nearly passing out. Thought I was going to be sick in a meeting at work.

Sounds awful. Maybe mine is connected to this after all, I’ve just ordered some tablets. Can I ask if you always felt like that in the 15 years you had low iron? For me I was fine a month or so ago

OP posts:
nessiethecat · 27/06/2025 22:00

@IlovelowryThat sounds very similar to my situation but my doctor is not concerned at all! I’m on TXA and I get ferrous sulphate from the pharmacy without prescription. So far I’ve only been able to raise my iron to mid 40s but I do feel the difference.

Ilovelowry · 28/06/2025 04:36

@nessiethecat I also had a mirena fitted. Which was a game changer really.

But there was no pressure from GP.

There are a million threads on iron levels. Over 70 is optimal. Over 100 is better.

Just keep plugging away with the iron tablets. One every two days on an empty stomach with vitamin C tablet.

Ilovelowry · 28/06/2025 04:37

PinkHazel · 27/06/2025 21:32

Sounds awful. Maybe mine is connected to this after all, I’ve just ordered some tablets. Can I ask if you always felt like that in the 15 years you had low iron? For me I was fine a month or so ago

Nope. Just one day I started veering down the corridor at work! And having rushes of Nausea.

I presume it would account for my tiredness when the kids were little though.

stayathomer · 28/06/2025 04:42

The kind of fuzziness/ heavy arms etc/ shakiness is familiar to me op, I’m waiting for bloods back. I’ve also had on and off chest pains and tightness and been prescribed an inhaler. Hope this gets figured out for you

PinkHazel · 28/06/2025 07:37

stayathomer · 28/06/2025 04:42

The kind of fuzziness/ heavy arms etc/ shakiness is familiar to me op, I’m waiting for bloods back. I’ve also had on and off chest pains and tightness and been prescribed an inhaler. Hope this gets figured out for you

Let me know how you get on, do you experience dizziness too

OP posts:
Nopayrise · 28/06/2025 07:41

Supplement everything. A good multivitamin plus iron, B12 and D on top. Give it a couple of months and see how you go

Giggorata · 28/06/2025 07:45

I thought that taking iron pills on an empty stomach was likely to irritate the stomach lining.

stayathomer · 28/06/2025 08:17

No, no dizziness x

Ilovelowry · 28/06/2025 08:22

Giggorata · 28/06/2025 07:45

I thought that taking iron pills on an empty stomach was likely to irritate the stomach lining.

I think some people react differently.
You aren't supposed to take iron within 2hrs of tea/coffee (the polyphenols interact).
So for me it worked to take the iron/high strength vitamin C at 5am when I woke up, then my decaf coffee at 7am.

Andthatrightsoon · 28/06/2025 08:28

I had all these symptoms - I thought I was dying. My ferritin was 9 and haemoglobin 95. I've just had 2 iron infusions in hospital and starting to feel human again. Hope you feel better soon, OP. Oh, and mine came on suddenly too, on a dog walk. I nearly fell off the path.

DemonsandMosquitoes · 28/06/2025 09:16

Three years ago I had all those symptoms. Starting with a sore throat and weird head and neck pain.
Within days I went into fast AF (and ultimately needed an ablation). Still get palps, still on beta blockers.
I was diagnosed with bilateral vestibular hypofunction, resolved after six months with rehabilitation exercises.
I developed pulsatile tinnitus, MRI clear. Still have it.
All within weeks of each other. No idea what the cause. Still living with some of the symptoms. My bloods are fine.

PinkHazel · 28/06/2025 13:08

Andthatrightsoon · 28/06/2025 08:28

I had all these symptoms - I thought I was dying. My ferritin was 9 and haemoglobin 95. I've just had 2 iron infusions in hospital and starting to feel human again. Hope you feel better soon, OP. Oh, and mine came on suddenly too, on a dog walk. I nearly fell off the path.

Is this right? for Haemoglobin? Didn’t really take much notice of this on my blood test and it was flagged as normal
HbA1c level (diagnostic reference range) - IFCC standardised 32 mmol/mol

OP posts:
PinkHazel · 28/06/2025 13:10

DemonsandMosquitoes · 28/06/2025 09:16

Three years ago I had all those symptoms. Starting with a sore throat and weird head and neck pain.
Within days I went into fast AF (and ultimately needed an ablation). Still get palps, still on beta blockers.
I was diagnosed with bilateral vestibular hypofunction, resolved after six months with rehabilitation exercises.
I developed pulsatile tinnitus, MRI clear. Still have it.
All within weeks of each other. No idea what the cause. Still living with some of the symptoms. My bloods are fine.

Did you feel dizzy, sick and generally weak / unwell? How did you get to the point of your diagnosis can I ask

OP posts:
PinkHazel · 28/06/2025 13:13

PinkHazel · 28/06/2025 13:08

Is this right? for Haemoglobin? Didn’t really take much notice of this on my blood test and it was flagged as normal
HbA1c level (diagnostic reference range) - IFCC standardised 32 mmol/mol

Ignore me I’ve realised that isn’t it, think that’s to test blood sugar

OP posts:
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