Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Just got back from A&E :(

13 replies

TinkerbellesMum · 24/05/2008 00:19

Quick background...

Tink was born at 31 weeks and had to be ventilated for 12 hours, after that she did really well.

Since she's been released we have been to A&E almost every month, often a couple of visits in the week and we've not had many months off. She has had Croup 3 times and Bronchiolitis 2 - plus the times the doctor has said "we don't diagnose croup/bronchiolitis more than once" (don't know why, feel free to tell me if you know).

Last couple of days she has been off colour, nothing specific that you could put your finger on. Wednesday she kept asking for people I had to ring so she could talk to them, but she just wanted to listen to them talk, including my sister who she never goes to we saw her same day and she wanted cuddles! Thursday constant stream from the nose. Had a lot of restless sleep.

Today she woke early and refused to eat the cereal she had asked for, mostly had the milk she's only eaten yoghurt and cheese today, hardly drunk. She started the day looking like she had a heavy cold but during the day she got worse. She got the quilt from the spare room and climbed on my lap with it (she had a temperature too, guess how sick I felt!) she's slept on me all day, I've hardly eaten or been to the toilet because she won't let me put her down. Her breathing has gotten more and more difficult and she has put a lot of effort in.

I called the GP this afternoon, normally a little late for same day but they did fit me in. She had all the indications of a poorly child (as GP put it) that needed hospital. He got her triaged over the phone so when we got there they just had to do her obs, classed her as yellow (urgent case) and rushed her through.

I asked the GP what's going on with her, he said they don't diagnose asthma this young, but she is a bad asthmatic, that every virus (this weeks mild cold) goes straight to her chest and leaves her poorly.

It took two nebulisers to bring her down - you would have thought she was possessed the way she screamed and threw herself around, she had so much drool and phlegm down her front the doctor thought she had spilled the neb stuff out. Fortunately after that she picked up. After three hours (been 7 hours since I left for GP) they checked her, she had gone bad again but not as bad. So we did ten puffs and come home.

We've been sent home with blue and brown inhalers and steroids. She has to have the blue inhaler every 4 hours and the brown twice a day starting Monday (when she's not on the 4-hourly puffs) when she will be on it permanently.

I asked the doctor what's going on and she said it is because of her being prem and intubated, also because I was having a rapid progression so she didn't have steroids before birth. It's all added up to asthma.

I'm so fed up, I'm sick of seeing the inside of that hospital! Daddy didn't turn up until gone 9pm. He's gone to bed and I have to stay up till 3:30 so she can have her next dose. Apparantly I'm unreasonable asking him to help because he's been at work all week.I've obviously not had a hard week (judging by the state of the living room) staying up with Tink and putting up with her tantrums all week. He didn't say that, but he got annoyed when I suggested he did the inhalers so I could sleep and the look on his face when we came in! I'm actually keeping the place better than when he's here full time and I end up spending Monday catching up with the weekend and Tuesday covering Monday. (there's so much more I could say about all this but not enough room!)

OP posts:
Psychomum5 · 24/05/2008 00:23

oh dear......you poor thing, and poor tink too

I have been thro this with one of mine when tiny, altho she wasn;t prem so not nearly so poorly and scary, and it is so so horrid.

you have my sympathy......and many hugs for a poorly little lady too.

wrinklytum · 24/05/2008 00:24

Oh sweetheartxx

You've had a stressful day.It is hard with a poorly child and I know what you mean about hospitals.

Try to get some sleep yourself.When you are tired everything looks much worse.

I think dh needs to cut you a bit of slack re the house if your daughter has been so poorly.Maybe you could reach some compromise.Could you afford a cleaner ??

Anyhow,hope your little girl is better soon.

Best wishes,Wrinkly

littlelapin · 24/05/2008 00:24

This reply has been deleted

Message withdrawn at poster's request.

orangehead · 24/05/2008 00:25

How old is tink? So sorry she poorly at mo. My ds1 has asthma and was very poorly last year with pnuemonia which was very scarey. It sounds like you had a rough time, it all shakes you up a bit doesnt it. Hope you ok

TheMadHouse · 24/05/2008 00:32

I just wanted to say trhat our peads wont diagnose Ashma until at least two.

DS1 has a rough time with his chest and we are in and out of hospital.

He does not respond tot he brown inhauler, but does to oral steriods (pred) and the blue one when he needs it. we can give him up to 10 puffs every two hours if he needs it.

Nebulisers can be awful. They make them hyper and raise their heartrates, so do make them throw themselves around.

DS1 was only 2 weeks prem, but had a really bad case of broncilitis at 4 months.

He was tested for specific antibodies as he picks up every virus going and it goes striaght to his chest. They came back low, so he is going to have all his imms again.

I never stay awak for the inhaulers, we fell that sleep is more important as long as his breething is not laboured and his chest is not recessing too badly.

You need to see a respitory specialist for a firm diagnosis and also a long term strat.

TinkerbellesMum · 24/05/2008 00:32

Thanks for the quick responses!

Tink is 22 months. Couldn't afford a cleaner, I'm on disability and he pays over the odds for his other children (plus wedding loans and visiting them because they live in Croydon). We can't even afford for us to live together.

I don't know why he's being like that, he does it every weekend since he's been away but he is the laziest person I know and the flat has been far better since he's been gone, the "mess" now is toys which I've decided isn't really mess. There are two bin bags in the kitchen which he filled last weekend and left, I can't carry them because of bad back, being on the top floor and he has the only key to the back door so I would have to walk all the way around. He moaned that I complained about the smell, like it's my fault for leaving them. (this is all tonight too)

Wish I could go to bed, but I won't be able to wake up to give her inhalers in the middle of the night.

OP posts:
TheMadHouse · 24/05/2008 00:34

22 months is too young to diagnose ashma, as she had puffer tests?

Sleep next to her then is her beething becomes more shallow or faster you can give the inhauler in her sleep

TinkerbellesMum · 24/05/2008 00:44

Everyone here has been saying she's too young to diagnose, but now they seem to realise it's getting silly. The staff are recognising us at the hospital now! Last time we went I spoke to the man who had looked after her at 5 weeks, one of his first cases as a nurse, and we've seen a few times since. (Why does the children's hospital have to employ such yummy male nurses?)

The thrashing was just because she didn't want it. She's very independent and hates to be held down. When it was switched off she showed me how to switch it on and how you wear it, she also did mine and a nurses SATS, but refused her own! She was very hyper after it, you'd have thought that she was making it up, except you could still count her ribs as she breathed.

Going to be going to see a GP next week to get something sorted out, I don't like our asthma nurse and I think as she has special circumstances she should be seeing more than a GP's nurse. It doesn't help my neice has just been refered to a consultant after having lots of chest problems herself because they think she may have cystic fibrosis. My family are already stressed about her and now they're worried Tink is ill with something too.

PS I forgot to say, anyone who's read my posts this evening will see my slightly peed off feelings coming through. Between Tink being ill and all the talk of abortion* on TV I'm feeling a little fragile and snappy. Sorry to anyone that has got upset from what I've said.

  • My first was born alive at 20 weeks so this debate has been quite personal to me, hearing a nurse describe how she had to watch a baby die or the many other things coming out of it was quite upsetting.

PPS, sorry this has been a little disjointed.

OP posts:
emma1977 · 24/05/2008 00:45

Sorry to hear that she's poorly and that you're having a bad time of it.

Some little kids are bad 'viral wheezers' and every cough/cold/chest infection leaves them struggling to breathe. It can be very scary and stressful at times for the parents. The nebulisers themselves aren't nice because they make lots of noise and involve having to wear a mask- never easy with a toddler. It doesn't necessarily mean that she will be asthmatic or have a weak chest when she is older.

I hope tonight passes OK for you all and that you get some rest. Ask for help if you're at all worried about little Tink.

TinkerbellesMum · 24/05/2008 00:52

The doctor just said tonight she will probably grow out of it, I guess from how she described it when her lungs are big enough that any damage from the ventilator is too small to matter.

They asked about the inbetween times to see if it's just with viruses, she is constantly getting breathless and wheezing, she knows now to fetch her inhaler without being asked if she isn't well. The dips (I'm too tired to remember the proper names) come very quickly with her and she doesn't have to be running around to get that out of breath.

I guess the strange stuff coming out of the mask can't help when you see it coming at you!

OP posts:
Pheebe · 24/05/2008 08:40

GP may be partly right about tink growing out of it, your story sounds very like our neice. she was born at 29 weeks by emergency c-section so no steroids b4 birth to speak of and straight on a ventilator etc etc. as a new born he chest was fairly ok (probably cos she was on regular meds) but seemed to get progressively worse as they weaned her off, peaking at around 18 months since when she's gradually improving, fewer, less severe infections and attacks. she's 4 now and although not formally diagnosed she's being managed as if she has asthma, has regular inhalers etc and is fast-tracked in to the docs if she gets a chest infection.

SIL puts a humidifier in her room, all the time when she was bad and now just when she's wheezy, props her bed up (put something under the mattress as its more comfortable that way. No pillow (can harbour dust etc. change sheets every few days, scrupulous about hoovering (they have a dog that moults loads). sure there's lots more. perhaps you could start a thread about managing asthma in little ones.

O and her dh is a useless t**t as well, lazy, ignorant and thinks cos he works he shouldn't have to do anything at home. he's the one missing out as the children obviously prefer mum to him and it shows and it hurts him - you get out what you put in.

{{{hugs for you both}}} hope tink is feeling better

TinkerbellesMum · 24/05/2008 15:09

lol That last paragraph describes TD. I think there's more to it with him than just being the man who goes to work, I think he feels like he has lost 3 children (our daughter and his sons who live with their mum in London so he only sees once a fortnight) and is scared to get close to Tink. He acts like it doesn't bother him that she is a Mummy's girl, but I'm sure it does. She even goes to my Mum over him.

She is very quiet today and just wanting to cuddle. I've been in bed most of the day because I'm so tired, I only got up because my Mum and brother have been round. She still sounds noisy, but she's not as bad as yesterday. They've told us now if she gets bad again and doesn't respond to inhalers to call an ambulance, I guess that will get her medicated faster.

OP posts:
luvaduck · 27/05/2008 16:32

hi there

hope she is better today!

just to say there are two distinct types of preschool wheezers

  1. sound very like Tink if i had to put my money she would be this type - has small airways which produce a wheeze when a virus/bacteria is aorund by narrowing airways further. only get symptoms with a virus (not nec have all the symptoms though so may be difficult to spot)
    usually premature or known lung disease.

  2. asthmatic type - its true you can't diagnose till later formally but you can have a pretty good idea. these children usually have a family or personal history of asthma/eczema or hayfever. they can get wheezy at any time without preceding cough/cold or temp. its usually worse first thing in morning and at night.

now obviously she could be unlucky and be predisposed to both but unless there is asthma etc in the family this is unlikely. its worth finding out which ne she is as the treatment is ever so slightly different. the good news is that if she is wheezy becasue of her prematurity then she will grow out of it.

there is a good study from the brompton (top respiratory hospital in london), which was written up in several journals (including well known drugs and therpaetuics bulletin about a year ago)about using a medicine called montelukast (a mast cell stabiliser) for pre school wheezers. this is used in a different way to on the normal asthma step up treatment - you can either take once a day for 7 days at the start of an attack, or daily for 6 months as prophlayxis. it is very well tolerated and not really any side effects (occasionally sleep disturbance)

basically with the number of times poor little tink has been admitted it sounds like you need to see a specialist to discuss further management. could you ask to be referred to a paediatric respiratory specialist? would be very reasonable, espeically gievn her history.
where are you??

sorry about thousand typos haven't got time to correct them all...hope this makes sense
and good luck x

New posts on this thread. Refresh page