Ulcerative colitis, would you call 111?

[changednameagain1234]

Hi,

Just looking for opinions really.

I was diagnosed about 19 years ago. Over the years spent a couple of months in hospital (about a year after diagnosis). Had many long periods of remission followed by flares treated with steroids.

I am on biologics and Mezalazine.

I started with really bad tummy pain and backache about 2 weeks ago (different for me, I don’t usually get pain or backache), as it was different I didn’t think it was colitis related.

Anyway fast forward to this past week, blood in stool on Wednesday and going more often, to now. Past 3 days going about 17 times in 24 hours, all but a couple are just bright red blood, the pain is awful before i go and during.

I have about 5-10 seconds warning or it’s too late.

Spoke to ibd nurse Friday and the waiting for my stool sample from Wednesday to come back.

I am used to flare ups, but the pain is unusual for me. I am also used to blood, but there is so much and mostly just passing blood.

Can this wait until tomorrow do you think? When I can speak with an ibd nurse.

I just feel like I am going downhill fast and worried if I leave it another 24 hours it will be even worse.

What would you do?

Unfortunately ulcerative colitis is IBD which is totally different to IBS, so good fibre for IBS is literally poison for IBD.

Why can’t fibre be fibre! X

What foods are beneficial for UC during a flare up?
Soluble Fibre – Dietary fibre can be categorised into two forms, soluble and insoluble. Soluble fibre is partially digested (broken down) in the large intestine to form a glue like substance, which helps to produce soft/formed stools, without causing inflammation. Examples of foods rich in soluble fibre are:

Oats e.g. Porridge oats/Ready Brek ®, oatcakes
The body of fruits and vegetables e.g. peeled apples and pears, tinned fruit, peeled root vegetables such as carrots, parsnips, turnip

Any help?
I do feel for you .
Maybe you could move to a better hospital??

Thank you @allamberedover

I might get dp to make some sort of soup to get a lot in at once if he can, and i could put chicken in to keep my protein levels up! X

Glad you’re improving OP and no worries at all about replying, I totally understand as I’ve been there myself many times unfortunately!

For the constipation I’d recommend a magnesium citrate supplement, I go for the gummy kind (start with one gummy not two) and it’ll gently get you moving; the magnesium citrate draws water into the bowel making the stool “fluffy” so it’s much easier to pass too.

When flaring I stick to a low residue diet religiously (I’m petrified of fibre when flaring) but the magnesium works a treat and is gentle on your system too xx

https://www.mkuh.nhs.uk/patient-information-leaflet/dietary-advice-for-ulcerative-colitis-2#:~:text=Wholemeal%2C%20granary%2C%20barley%20or%20dark,Brown%20rice.&text=Root%20vegetables%20%E2%80%93%20potatoes%2C%20sweet%20potatoes,carrots%20Aubergines%2C%20courgettes%2C%20pumpkins.

my daughter had a similar thing. Go to A&E. She was started on IV Steroids and kept in. The worry is that the integrity of your bowel will be affected. Don’t wait just go to A&E

Thank you.

I tried taking a magnesium supplement about a year ago for restless legs and they gave me the runs terribly.

Bit worried to take them 😬.

Still bleeding, i don’t get it with all the steroids and bed rest