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Original poster

Cheers for all the support on my hysterectomy thread - I didn't die, bolt upright mid op or contract MRSA

29 replies

MrsCarrot · 21/05/2008 20:18

or any of the other million things I was terrified about, strangely enough!

So, thanks for all the kind words, advice and information tips, especially bag packing ones from Expat. I had to take two to fit it all in but it was very useful.

My histology is back and is all clear so that is a huge relief. It is an odd feeling though, as it was completely clear, ie, the previous cone biopsy had removed all the cancer, it felt really weird to think a healthy organ was removed. Unfortunately that militant HERS website had got to me and I couldn't stop thinking about all the things they said could happen, especially as it seemed I didn't need the op, but I know I did
really as they could never have been sure they'd got it all or that it wouldn't come back but it is frustrating that there was no way of knowing.

I am trying to put possible side effects out of my mind as basicly I feel really well and think I will probably be fine, but thanks again, the support was so helpful.

Anyway, enough sentimentality, as you were.

OP posts:
poshwellies · 21/05/2008 20:31

Oh, I am happy for you Mrscarrot-was thinking of you the other day and wondered how your op had gone.So pleased you got a clear result!!

How you feeling now? (is that a silly question? ).Hope you are resting as much as you can.Don't worry about that HERS site(blardy scaremongers),I'm a yr post op next month,and everything is absolutely fine.Wish you a speedy recovery

x

Original poster
MrsCarrot · 21/05/2008 20:36

Thank you, poshwellies, I am recovering well and trying to rest. Ds2 is 15 months so he's quite lively.

The first week home was such gorgeous weather I lay in the garden on a lounger reading. It was lovely.

Have you really had no side effects?

OP posts:
poshwellies · 21/05/2008 20:49

Glad you could rest,first few weeks are pretty tiring,waddling around like your guts may fall out at any even time .

I had a few infections within my scar,right hand side of it didnt seem to heal as well as left side,so took a few doses of antibio's to clear-no great shakes,but I was worried I would never heal (I am a bit of a worrier at the best of times!).Also had a few water infections,pretty minor really (I had a catheter for a few days extra as my bladder decided to shut down after op)

Ermm, I was told to have sex as soon as possible,so we did-right on the 6 weeks-it was more me than dh-my hormones were going a bit haywire wierdly enough,took it very slowly and all was fine,I was petrified I would lose sensitivity,it defo feels different from before but ermm *whispers..everything works(Sorry prob tmi!).

The only difference I feel,is that I don't often have the urge to pee,I feel like a need to go but its a very different feeling from before,I guess its because theres no pressure from the womb anymore,I don''t know,but its not a problem anyway,it just feels different.

Sure you'll be fine Mrs C.

Original poster
MrsCarrot · 21/05/2008 20:59

not TMI at all, that's exactly what I wanted to hear!

Sorry your healing wasn't straightforward. You must have been in hospital for ages if you had a catheter all that time. I need the loo quite often and can't wait as long but I think it's probably still irritated. Hasn't been three weeks yet.

They send you home so quickly now. I got back to the ward Friday evening and they wanted us to go home Sunday morning. I felt too ill, really groggy and sick and the doctor said stay an extra night but I felt like a couple of nurses thought I should have gone home.

OP posts:
poshwellies · 21/05/2008 21:15

I was in for 5 days and really by that time,the nurses were almost pushing me out of the door,I felt like you also,by the 4th and 5th day,the actual bruising and pain was coming to the surface,I was a bit of a tearful mess to be honest,although I wanted to go home,I was also scared of how I would cope with a excitable 4 yr old and a pre hormonal moody 12 yr old! Dh had 2 weeks off though and I really did b*gger all.

Are you scared of how you will feel sexually? (sorry if thats a forward question). I really was beside myself with worry,all the women on my ward were in their late 50's/60's 70's and I felt completely alone with my fears as a 31 yr old woman.

If you want to email me direct I'm more than willing to discuss how I've felt and coped etc,its quite a daunting prospect and it was a huge issue for me to get my head around.

Original poster
MrsCarrot · 21/05/2008 21:27

God yes, on the Sunday, the day they wanted me to go, I was in agony, sobbing continuously and horribly groggy, couldn't eat, was gagging and so on. I needed the loo every half an hour and it felt like the floor was coming up over my head. The thought of being at home like that with three children was unbearable.

Yes, I have been absurdly worried about the sexual aspects of the op, especially after reading that HERS link. It would be great to chat about by e-mail if you really wouldn't mind. That's very kind of you. I was the youngest by far too. The gynae cancer nurse said she couldn't remember when someone last asked a question about the drugs and breastfeeding as everyone is normally so much older.

OP posts:
poshwellies · 21/05/2008 21:43

This reply has been deleted

Message withdrawn

Original poster
MrsCarrot · 21/05/2008 21:54

Thanks

OP posts:
ThingOne · 21/05/2008 21:56

Glad to hear it went well, Mrs C .

susiecutiebananas · 21/05/2008 22:05

Hello you! SO good to see you posting. I'm also really pleased that the results came back clear so you won't need any further treatment I take it? I can fully understand why it also made you feel strange that a healthy part of you had been removed.

I guess the only thing that can be said about that is, that there was no real way of knowing that it was ok, and should you not have had the operation and it was effected, then you know what could have progressed from there. I think perhaps if you see that as a positive thing, that you don't need more treatment, that it hadn't spread etc maybe it will help you reconcile those feelings.

The advice i'd give you know, with your recovery is, truly to rest as much as you possibly can. You may well feel ok and start doig more, but you really do need to rest and do little for a good 6 weeks. My mum thought she was feeling ok post op after about 3 weeks, and thoroughly over did it, ending up being really poorly and laid low for far longer. She had hers as an emergency from a abormal biopsy from fibroids and a cyst. She became very unwell suddenly as they were deciding between appointments what to do, and ended up having it under really stressful circumstances. Her uterus was also perfectly healthy, when tested. Such a relief.

Anyway, sorry for going on! just really pleased to see you. Take care, and if ther is anything you need at all, do shout!

Original poster
MrsCarrot · 21/05/2008 22:06

Thanks, Thingone

The peppermint tea came in very handy btw!

How are you feeling now? You were working on some relaxation and had more surgery coming up, is that right?

OP posts:
Original poster
MrsCarrot · 21/05/2008 22:14

Hi Susie

Yes, I am trying to be careful not to overdo it as I am feeling a lot better. I get really tired.

I do know it had to be done. Also, yesterday, I had a chat with a someone from school I had thought was a GP but actually they used to be a gynae cancer specialist at The Marsdon. I knew the type I had was rare and more aggresive but she said it really is very nasty and moves very quickly and tends to be seen in younger people like me and it's worse the younger you are or something.

I would have always worried about it and it could have come back and next time might have been too late so I have to consider myself lucky.

OP posts:
Original poster
MrsCarrot · 22/05/2008 12:39

Hoping to see and thank some morning people..

OP posts:
Bridie3 · 22/05/2008 12:45

Glad it went well!

BabiesEverywhere · 22/05/2008 13:00

Glad to hear the op went as well as expected.

Original poster
MrsCarrot · 22/05/2008 13:01

Thanks, Bridie. Lots of people were really helpful to me, it's hard trying to catch them all!

OP posts:
avenanap · 22/05/2008 13:02

I'm really pleased it went ok for you.

Sidge · 22/05/2008 13:04

That's great news, I'm glad all went well and the histology was clear

Original poster
MrsCarrot · 22/05/2008 13:09

Avenanap - I did go back to the GP like you said and she was lovely, really sensible and straightforward and actually just what I needed. I had lost sight of why I needed it done really, especially after the HERS things, it was like, why are doing this to me? I wanted to run away very fast.

Thanks Babies everywhere

OP posts:
Original poster
MrsCarrot · 22/05/2008 13:12

Ah, here you all are!

Sidge - Thank you - the peppermint tea and extra pillows were a lifesaver. I had pillows under my knee and my back. I looked a bit spoilt compared to everyone else with their one flat one!

OP posts:
2Happy · 22/05/2008 13:15

Hi MrsC, great to see things went well. Hope your lovely family is taking good care of you x

Original poster
MrsCarrot · 22/05/2008 13:18

Hi 2happy - thanks, yes they are looking after me, poor dh has suffered, I am an atrocious patient.

Haven't been on post natal thread much, I always seem so behind with everyone.

OP posts:
Sidge · 22/05/2008 13:38

You can never have enough pillows in hospital!!

Original poster
MrsCarrot · 22/05/2008 16:41

Well, I had three and could have done with a couple more really...

Dh brought fresh pillow cases in for me but they were stripey coloured ones and it was obvious I had lots. I felt a bit princessy but at least I was comfy ish.

OP posts:
laughalot · 22/05/2008 20:32

So good to hear it went ok mrs carrot big hugs from us xx

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