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Intraoral HSV-1 outbreaks

3 replies

Crole · 20/05/2025 11:22

Does anyone here get recurrent herpes outbreaks inside their mouth and have any advice for reducing the nerve and sinus pain related to it?

I had the first outbreak in mid-January on my hard palate, doctor misdiagnosed it as a sinus infection and gave me antibiotics which obviously didn't help. I suspected it was herpes then even though I've not had a coldsore for 15+ years.

When I had the same symptoms last week, (blistering headache around temple, deep sinus pain, fatigue, facial numbness), I wasn't surprised to get the blisters on my gum the next day. I'm a bit concerned at how close these outbreaks were, I had proper flu in March as well so probably didn't help.

My immune system hasn't been great the last couple of years with miscarriage, divorce, move and work stress so I want to prepare myself for it happening now until I'm back on my feet.

I've got a doctor's appointment tomorrow so will ask about antivirals for next time but maybe someone suffers the same thing and some good tips for the nerve pain that's still lingering.

The blisters are sore but manageable thankfully.

OP posts:
BreezyBlock · 21/05/2025 06:45

I don’t get it there but do get it on my shoulder and I used to get that horrible lingering nerve pain. Once I was on the anti virals as a suppression dose, all of that went away so that’s your best bet I think. They can give you gabapentin for the nerve pain but stopping it happening in the first place is probably easier. I think it took about 3-4 months of the antivirals for the pain to completely go. Good luck with it.

Crole · 21/05/2025 12:54

BreezyBlock · 21/05/2025 06:45

I don’t get it there but do get it on my shoulder and I used to get that horrible lingering nerve pain. Once I was on the anti virals as a suppression dose, all of that went away so that’s your best bet I think. They can give you gabapentin for the nerve pain but stopping it happening in the first place is probably easier. I think it took about 3-4 months of the antivirals for the pain to completely go. Good luck with it.

Thanks, the doctor prescribed pregabalin for the nerve pain. I've never heard of it but it sounds like it has some dodgy side effects 😣 This is my first experience with nerve pain so I thought there might be other ways to sooth it but it doesn't look like it. Got another appointment in 2 weeks so will check about the antivirals, really scared it will come back.

OP posts:
BreezyBlock · 21/05/2025 13:30

It’s a horrible virus isn’t it. Lysine works for some people. See if you can figure out triggers. Sunlight triggers mine and my periods (and being run down etc). Sometimes you might not be able to work it out and sometimes it doesn’t come back (let’s hope you’re one of those people!). Failing that, the anti virals are really effective.

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