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Corneal erosion is driving me mad

4 replies

blooshboon · 16/05/2025 16:11

I’ll take you back to the beginning.

Feb 18 - woke up during the middle of the night and went to rub my eye. Instead poked myself directly in the centre of my eyeball, it watered it hurt a little but was fine by the morning.

a week later, went to opticians to pick up new glasses and told them I was having some watering from the eyes, only thing that had happened was the eye poke. Was told “ it usually take a week or two to heal, leave it alone “

March 16 end up at the eye hospital, as watering was uncontrollable, and was hurting so much, I’ve never experienced pain like it. Was told I had RCE and was given Hylo night and sodium chloride.

april 16 I’m back at eye hospital because th is episode is far worse and vision is now becoming affected. Had one incident where I couldn’t open my eye and the light sensitivity was insane. Was then given Hylo forte and chloremphanicol.

01 May - restarts getting again, I’m still using Hylo forte and Hylo night as advised. I double down on the doses as advised by pharmacy, until I find myself in ER on the 7th, as eye pain was unbearable, vision is affected 60% more than last time, I can’t sleep because I’m up every few hours with eye watering, swelling, and painful. they once again give me chloremphanicol, am told if it doesn’t heal I need to head back to eye hospital.

get there today, they check eye pressure, say they can’t see any active erosions, but can see scarring which is in an area it shouldn’t be affecting my vision. They give me levofloxicin ( antibiotic ( drops and chloremphanicol again.

At this point I’m exhausted, I can’t sleep for more than an hour before I’m forced awake with excruciating pain, my eye is now clenching when I’m asleep which I’m sure is down to stress and sleep deprivation. They keep giving me cocktails of ointments and drops, none of which are working and they are NOT listening, I’ve spoke to cues, who are only advising to go back to the eye hospital, of which is 50 miles away and it costing me £70 in a taxi each time I go.

and it’s not like I’m getting any helpful answers as I’m waiting 6-7 hours to be seen and they just want to rush you out so they can see the others waiting.

in at my wits end, I can’t blink, I can’t sleep, I can’t cry, I’m physically and mentally exhausted. I’ve read about bandage lenses? But these haven’t been mentioned to me, and now there’s scarring on my eye! Which I feel could’ve been avoided had I actually had more helpful treatment.

has nobody got any experience with this awful injury? Any tips for sleeping? Any tips at all would be great. I’m using cotton pads and ice water to help with the swelling, but it isn’t doing much now.

OP posts:
Iwon · 16/05/2025 16:18

Loads of lubricant drops. Every hour if needed. If you scratched your cornea it will take a while to heal.
Bandaged lens is helpful but tricky to get in, and if irritating you that's a return to the hospital to have it taken out.
Pain killers drops were my life saver and go to....
I had both eyes operated on to removed the corneal erosion - 6 weeks apart. It was ridiculously painful but did solve the problem.
Mine started with baby finger nail scratching my eye.

blooshboon · 16/05/2025 16:42

Iwon · 16/05/2025 16:18

Loads of lubricant drops. Every hour if needed. If you scratched your cornea it will take a while to heal.
Bandaged lens is helpful but tricky to get in, and if irritating you that's a return to the hospital to have it taken out.
Pain killers drops were my life saver and go to....
I had both eyes operated on to removed the corneal erosion - 6 weeks apart. It was ridiculously painful but did solve the problem.
Mine started with baby finger nail scratching my eye.

How long was you suffering before they gave the surgery as an option?

OP posts:
Iwon · 16/05/2025 20:04

I cheated and went private after referral from my optician, NHS list at that point was 2 years. I had waited 6 months to be seen by then.
Saw the surgeon privately who said I was exactly the patient who needed seeing in eye clinic and so booked me into his NHS clinic. I had 1 eye done 5 weeks later, and the other eye 6 weeks after the first eye
(You cannot see for 2-3 days so must be done 6 weeks apart).
One the surgical pain went, the bandage came off and it was pure relief.

Ramblingaway · 16/05/2025 20:17

Has the Chloramphenicol got preservative in it? Mercury something I think it is? If so, my mum was allergic to that, so her eye got worse, not better. She had to get them to prescribe the individual dispenser ones, preservative free.

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