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Awaiting endometrial biopsy results -

7 replies

OnThisHarvestMoon · 09/05/2025 22:52

Hi all,

I'm freaking out and wonder if anyone can offer advice on how to calm tf down.

I'm waiting for the results of an endometrial biopsy, taken because of 4 months of irregular bleeding post weaning my toddler from breast milk (side note: getting a referral was like pulling teeth as multiple doctors wrote the irregularities off to breastfeeding). It’s also been discovered I’m quite anaemic, and I certainly feel exhausted.

Tonight (a Friday) I missed a call from my hospital (they called for exactly two rings!) and when I tried to immediately return the call I got an automated message that open hours were over. It's concerning, because the consultant who took my biopsy said they would only contact me directly if my results were abnormal and required me to come in and discuss.

So obviously I'm worried about that, but what's really freaking me out is as well potential endometrial cancer symptoms, I've also been getting weird lower back pain. I've actually been experiencing that longer than irregular periods, but I assumed it was from lifting my giant toddler constantly, and like an idiot, never went to the gp or mentioned it alongside my endometrial symptoms.

I know I'm massively jumping the gun. My endometrial diagnoses could end being something like pre-cancerous cells. My back pain could be unrelated. But I can't stop spiralling that I maybe I have one of the rare aggressive types of endometrial cancer and it's spread to my spine.

My main fear centres around my toddler. She's only 2 and I just can't bear the thought that I wouldn't be there for her as she grows up. Worse, that it would be all my fault for not getting medical help sooner.

How do I survive the waiting?

With thanks for any help.

OP posts:
Lilgreygoose · 10/05/2025 03:47

Hand hold until someone comes along with more experience than me with endometrial stuff like this.

From my BC diagnosis, the waiting was the worst. If I could jump in a Time Machine and redo my time between biopsy and results - I would do lots of spontaneous things like go away for the weekend or throw a frivolous dinner party. Full on distraction mode.

Sitting around, worrying, fretting, didn’t change the diagnosis. Easier said than done, I know. Particularly if you feel exhausted.

Take your toddler and go have some fun with her. Plan to do something - even if it’s small - that will make her squeal with delight!

OnThisHarvestMoon · 10/05/2025 07:56

Thanks so much for taking the time to reply lilgreygoose. I hope you are doing okay post diagnoses.

I agree that “not knowing” seems more fraught than knowing and at least being able to start processing and make a plan. Unfortunately our weekend plans got canceled, but I have asked my husband if we can prioritise taking our LO to do something fun.

OP posts:
Lilgreygoose · 10/05/2025 11:43

Thank you, a year later, I’ve just had the “no evidence of disease” results so that’s all good.

Please check back in when you do get your results - I’ll be keeping everything crossed for you that it’s nothing serious and you get some help/solutions around the symptoms you are having.

in the meantime I hope you are doing something nice and distracted.

OnThisHarvestMoon · 11/05/2025 21:28

Well done on getting through what must have been such a tough year, and congratulations on being NED.

Thank you! You’re so kind. Hopefully if it is a cancer diagnosis, they at least won’t keep me waiting too long to get my results. I’ll let you know when I do!

OP posts:
OnThisHarvestMoon · 19/05/2025 03:04

Results came back better than expected. No cancerous or precancerous cells, just thickening of the womb with unknown cause so medication needed to try and return it to normal. Thanks for your kindness 💙

OP posts:
Lilgreygoose · 19/05/2025 11:40

Fabulous news! Hope you get sorted out quickly. (Thanks for coming back)

sandrevolutionary · 19/05/2025 18:59

I'm glad you've had good news.

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