Anyone around to come and talk to me about psoriasis?

[used2bthin]

Have I spelled it wrong? DD been diagnosed with it today. I am a bit sad for her as she has a lot of health issues including a genetic condition which is quite serious so it seems a bit unfair as the consultant said psoriasis is genetic too?? Does it come and go? Its quite rare in children I think? She's got stuff on her face covering most of her cheeks which the consultant was reluctant to call psoriasis as its not usual to get it there so young. She definately has it on her elbows though and a small patch on her thigh. The face was originally treated as excema but after trying all the usual stuff including strong steroids and pro topic the consultant just said lets try some other similar things and not label it as anything. It seems the best we can hope for is to keep it under control, I am worried about scarring though because even when her cheeks are smooth the skin is redder there compare to the rest of her face, I hope it goes away one day she's got enough to deal with

Well last year when I was ill, I don't remember when the psoriasis started (I had encephalitis so I don't remember much at all). But it was there when I started to get better, and has gradually improved over the past year. Nearly gone now. Mine has flared up about 12 times in my life, I'm 36, and was first diagnosed with psoriasis at 8. I was completely free of it for 3 years when I lived in Australia - all that sunshine! It's not so bad to live with, honestly. It sounds like you have a lot to worry about, I can imagine it's horrid to hear yet another thing being diagnosed.

I too am trying to resist the urge to nap but I'm so tired from the ear probs!! bleugh!! Have just eaten a plate of oven chips..... arghh!!!

It is thebecster, I'm reassured by the comments I've had on here though, that it isn't such a bad thing to people. I worry that DD will already feel different though and that this will add to it iyswim. Also yes its another thing to worry about and treat. Maybe we should move somewhere hot, that sounds good! The dr said to let her get a bit of sun actually so hopefully if we get a summer it will improve. Suncream seems to sting it though unfortunately, maybe I should let her go without it on days when we can just be out for a short while.

used2bthin - Aveeno is an oatmeal-derived cream. Can get it w/o prescription from Boots - they keep it behind the counter. Can be used on kids

Aveeno thanks for the tip. Is that a cream for psoriasis specifically(just checking if its a suncream?)

Another psoriasis sufferer here! Mine has only come on in the last few years and seems to be exacerbated by lack of sleep and busy days (hoping it will improve as the 3 dcs get older).

I like Aveeno - it stops the itching which is irritating rather than painful. I am also using cleansers from a company called purenuff stuff - they do some natural stuff for psoriasis here. You could contact them and find out if it is suitable for young children.

As far as sun cream we use Dr Hauschka's children's cream - I have put that on my legs (where my psoriasis is worse) and it did not sting. See here. Its not cheap but it does last well.

Thanks Sam100, sorry you must've posted just after I came off earlier. I will be getting that suncream I think. DD's patches (plaques?)don't seem to itch thankfully or maybe she just can't reach them. She occasionally scratches at her face but it really is not often luckily. Interesting that you say it flares up after a lack of sleep, DD is not generally a good sleeper these days although (touch wood)she's not been too bad this week. I hope it clears up soon and she doesnt have it too often. Can't believe she has got it so young, the consultant seemed surprised too tbh