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Brain Tumour diagnosis

11 replies

ThatBlueSnail · 07/04/2025 14:40

Firstly, I don't want anyone to panic or worry unnecessarily when a DC has a headache but I do want to share the details of what to look for in terms of suspected brain tumours because I know far too many families who've made umpteen visits to a GP and eventually been diagnosed in A&E.

Please familiarise yourself with the image below (from the Brain Tumour Charity) and importantly;

-1 symptom - see your GP
-2 symtoms - ask your GP for an urgent referral
-Eye abnormalities or vision issues - see GP AND Optician
-Seizure (without a fever) go straight to A&E

If you know something is wrong, please don't allow yourself to be fobbed off, unfortunately it happens far too often.

My incredibly healthy 18 year old daughter was in her first term at Uni when she was diagnosed with glioblastoma following a routine eye test, she was given a prognosis of 12 months but defied the odds by living 4.5 years.

Knowledge is power and speed of diagnosis is really important so please make sure you know what to look for x

https://www.thebraintumourcharity.org/news/support-news/brain-tumour-early-symptoms/
www.bemorelaura.com

Brain Tumour diagnosis
OP posts:
Bobbybobbins · 07/04/2025 18:43

Thank you for sharing this OP. So sorry about your DD.

Lovemybunnies · 28/04/2025 21:56

Thank you OP that’s really useful and I’m so sorry to hear about your DD too.

CreationNat1on · 28/04/2025 21:59

Thank you, I m sorry for your loss

mechanicalpencil · 28/04/2025 22:14

Thank you for posting OP
So very sorry about your DD 💐

Mydadsbirthday · 29/04/2025 18:31

Thank you OP.

Your daughter sounds wonderful. I'm so sorry for your loss and wish you love and strength.

MissAmbrosia · 29/04/2025 19:26

So sorry about your dd! Not something any parent should go through. My mum had a similar diagnosis aged 19. She was a very young mother and had just had my sister. GP put her symptoms down to post-natal depression. My grandmother was a nurse and knew something wasn't right. She was a given a prognosis of 1 year, but lived for 2. My memories of her are a bit fleeting but I vaguely remember the trips to the Royal Marsden. She died aged 21. Fucking awful disease. My dd is 21 now. I can't get my head round the fact my mum was left in London effectively on her own for treatment as there wasn't any alternative at the time. And I totally understand now why her death crucified the family.

healthybychristmas · 29/04/2025 20:38

I'm so sorry you lost your daughter. That's heartbreaking. Thank you for passing on the information. It's so good of you to think of others. 💔

Millyjanice · 29/04/2025 20:48

Thank you for sharing,OP and so sorry about your dd. Also @MissAmbrosia, sorry to hear about your mum. A truly terrible and cruel disease.

ThatBlueSnail · 30/04/2025 18:07

Oh my goodness, that's just utterly devastating @MissAmbrosia, she must have felt so bewildered, I hope things are better now in terms of taking care of patients even if the actual treatments haven't changed in 20+ years. I'm so sorry, it must have been incredibly hard to lose your mum so very young x

OP posts:
ThatBlueSnail · 30/04/2025 18:08

She really was @Mydadsbirthday and we miss her every single day xx

OP posts:
Crankyaboutfood · 30/04/2025 18:10

Thanknyou for this and so sorry for the pain and loss of your daughter and PP mother. Life is so precious and it is hard to process this kind of loss. Such young souls.

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