Cancer of the Thyroid, and it has spread. Any survivors here?

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Just had a phonecall from my sister. She went for a check up as she has had some thyroid problems. Turns out she has cancer, and it has spread. She was on the bus and on the way home, so couldnt talk much. She was half hysterical, what is usually the prognosis? The tumours in her neck are many, and large as grapes, and in clusters, much like grapes.

God I wish she was here and not in Spain, and I would just hold her close.

So sorry to hear this, Quint. I'm afraid I don't know about your sister's specific cancer but DH has oesophageal cancer so I know quite a lot about chemo and radiotherapy. Plus I know an AWFUL lot about worrying about a loved one with cancer! Just shout if you want to know anything or just want a shoulder to cry on.

Yes OJ, I guess you do. I might pick your brains on a later stage, though I hope I wont have to. How is Steve today? I read the other thread so know his breathing was not great last night.

Thanks MummyDoit. We have been living with my mums cancer for nearly 12 years now, I had forgotten how worrying it is the beginning when you have no information. Hopefully it will be like with my mum, where chemo is keeping it in check and she can have a relatively normal life.

You, Oj and and MB are truly inspirational with your courage. You have so much on your plates, yet you still find time to be there for others.

I was diagnosed with follicular thyroid cancer in 2003, at the age of 25. I had surgery to remove the thyroid gland and then radioactive iodine treatment to see off any remaining cells. Thankfully there was no spread.

Since then I have had two children and am doing very well. As someone else said, it it very treatable indeed, especially the papilliary and follicular types.

Feel free to ask me anything and I'll do my best to answer. It might be worth looking at www.thyca.org/ but only after you have some more information about which type of cancer she has, how it has spread etc etc.

I can totally understand how she feels. It's such a frightening prospect. If she'd like to get in touch with me, let me know.

Thinking of you all x

My mother didn't have cancer, but she had her entire thyroid gland removed for thyroid disease and lived perfectly well for decades without it. It's an expendable organ.

I had treatment for papillary (follicular variant) thyroid cancer 2 years ago. I had the complete thyroid removed and followed by radioactive iodine treatment to kill any remaining cells. It worked very well and I am fit and well with just regular checkups to keep an eye on things.

I would recommend the British Thyroid Foundation website for good, clear patient information when she is ready.

Best wishes

Thanks guys, and glad to hear you are doing well. I shall check out those sites.

My sister has been craving fish her entire adult life. Actually, she just thought about it, since she took a summer stroll in the rain, which contained radiation from Chernobyl. She now thinks there is a link. Have any of you heard about cancer after exposure to radioactive radiation?

Yes Quint, lots of children in Russia developed it after the accident.

Sorry haven`t read all of it but just wanted to say that from my limited knowledge of thyroid cancer the prognosis is usually very good.

Two years after Chernobyl my sister developed her first cancerous mole. She has had 4 taken in total. And now this. She is worried it is just the tip of the iceberg. But, she is a worrier.

I am ignorant about the real facts but I believe there were many cases of thyroid cancer following it because it is the organ that processes things coming into the body, ie it's kind of front line defence, so that's where the radioactive buck stopped in many people.
I think...

Have a look here

Does not surprise me. The border to Russia has the highest percentage of thyroid cancer in Norway, due to the nuclear testing in the Kola Peninsula.

Was diagnosed 2 years ago,had surgery and 3 treatments.The treatments in themselves are OK it's only the isolation thats a problem.
Thyroid cancer is called the god cancer, if thats possible,as it has a great prognosis

Isolation?

I believe you have to be in isolation for a few days following radioactive iodine treatment. As I understand it, you're in a room in a hospital for a few days, with a tv and a huge pile of magazines, waving to people through a window.

My friend had thyroid cancer and radioactive iodine treatment about ten years ago and been fine ever since. She has no thyroid gland and is on thyroxine, but never had any problems. She's had two children in that time.

Hope your sister finds out exactly where she stands very soon. I think knowing a bit but not all is a horrible situation to be in.

Thanks. I think she will hate isolation. As a single mum living abroad, I think then it might be better if she comes home, for who will look after her dd while she is in isolation?

The period of time you have to be in isolation is variable depending on your dose and on how quickly you get rid of the radioactivity. You have to drink a lot and shower often because it comes out in your urine and sweat. If you have very young children you are advised to stay away from them for a little longer to safeguard their health. I was out of hospital within 2-3 days and on my own at home for a few more days. Your sister will need someone to look after her daughter during that time.

Do you know if you get the radiotherapy right after the op, or is that spaced out a little?

You are usually scehuled about 6-8weeks after.becasue you need to come off drugs and often do an iodine free diet for 2weeks before and also because they need to find space for you as there are v few rooms and only one or two can be done at a time.
I did wait about 12weeks for mine after my honeymoon though.Individual case I think, depends on spread,size,type,etc

My radiotherapy was nearly 3 months after surgery. I did find that there was a LOT of waiting in between treatments and waiting for results, so you have to be prepared for that too.

I generally find they say,we'll retest in 3 months everytime I see thwm. I go private for it,completely by luck,so it's a bit easier to get treatment quicker.I think it depends on your local facilities

You are given a piece of paper when you leave the hopsital which states the amount of time you have to be away from adults/children/public transport etc. From adults it's only a couple of days after release,for children up to 2weeks in some cases.The more water you drink and the more showers, the less time you are away from people as yo eliminate radioactiviy quicker.I was away from my son for a week all 3 times,I was v quick at getting rid of it due to my age and that I didnt sleep because I wanted to get out so drunk loads!

How's your sister doing, Q? And what about you?

How did your sister do ?

I have just been diagnosed with thyroid cancer