Those of you with endometriosis diagnosed..

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... ' how ' did u get diagnosed please?
Thank you

Laparoscopy - that is (or maybe was) the only way to know for sure. I didn’t have symptoms except infertility

Lap and lab analysis too.
Still have pain 8 weeks post op tho.

Laparoscopy diagnosed endometriosis following investigations resulting from infertility.

Mid c section!

just a note to add here that my newborn at the time was declared a miracle due to the state of me. I’m stage 4. And wasn’t able to conceive another. 💐

I have scans approx every 12 weeks to keep an eye on cysts while I wait for bigger surgeries x

Same ish - i got ' whacked ' with infertility diagnosis 6 months ago
( even tho miscarriage history from natural conception)

We are guna try ivf b4 any laparoscopy
But
Ive been diagnosed infertile now
( Miscarriage history)

Did any of you concieve or do IVF
B4 diagnosis?

Thanks heaps

I had a laparoscopy to investigate infertility, they found pcos, drilled my ovaries and they also found endo and burnt it away. I had a repeat laparoscopy 4 years later and they had to burn it away again.

I’ve had symptoms of endometriosis since I was 16, my mum has it too. Both times for my dc it was the pcos that caused the problems not the endo. I conceived ds after my ovaries were drilled, I conceived my dd through icsi.

Not sure my story is relevant, because I'm not 100% convinced I have it!
Very regular periods since started, bit achy day 1 and nurofen helped, but otherwise no issues with cycles.
TTC and had various ultrasounds and a hycosy- all clear, nothing abnormal noted. In total TTC 12yrs, lost 3 pregnancies and no medical issues ever found.

During that time, 1 ultrasound suddenly said I had endo in 1 ovary! The report mentioned 'ground-glass appearance' and was described as a chocolate cyst /ovarian endometrioma. I work in health care, so was very surprised by this. I'd always assumed endo was something you were born with, and not something that can suddenly occur later on!

DH and I also had rounds of IVF and unfortunately lost those pregnancies too. The cause was explained by then as 'old eggs'.

During my last round of IVF, the scan saw no signs of endo on that ovary! Its a mystery to me how on earth it can suddenly appear and go- if that is even what happened?

Sorry OP, I have no advice, but happy to answer questions about IVF or infertility tests x

Laparoscopy.

Laparoscopy. Endo everywhere except bowel. Especially scarred ovaries and tubes. Conceived naturally but also miscarried, it is thought the endo affected my egg quality. We didn't have any type of treatment and we adopted.

Sorry to nudge in, but can endo be diagnosed from a hysteroscopy?

Not really. A hysteroscopy only examines the uterine cavity and endo is when the lining grows outside of this, eg the ovaries, bladder, cervix, bowel.

Mine diagnosed via ultrasound and said as it was deep infiltrating then it could be seen but was unusual , a highly experienced doctor found it ! Then confirmed via laparoscopy . Had surgery in 2021 and awaiting surgery again after 5 years of infertility , miscarriages and IVF. Happy to answer any questions l

I was diagnosed after a laparoscopy aged 18. I was diagnosed with PCOS when I was 15. My periods didn’t start until I was 15 and have always been irregular. I had the laparoscopy at 18 due to pain - I’ve had a further three laparoscopies since. I’m fortunate in that I conceived naturally three times one of which was an accident. Never had a miscarriage

Two ultrasounds and an mri, privately. I don't think that is typical. But I'm not a big fan of surgery. I was diagnosed a few years after having DD2.

Mine was through a MRI scan

I have Deep infiltrating endometriosis Stage 4

Initially had an ultrasound while I was still in the U.K. and was told it looked like it “could be” endometriosis but ultrasound can’t give a definitive diagnosis - that was after 6 years of repeatedly going to the GP about the same symptoms and fobbed off 🫠. I was placed on a waiting list for a laparoscopy. 2 years passed and I was still in the waiting list.
I’m now in the US with great health insurance via DH’s job and got the laparoscopy within a couple of weeks of requesting it. My OBGYN found my peritoneum absolutely ravaged with endo. She removed a lot of it from the usual places - outside of my uterus, around my fallopian tubes etc but also found deeper lesions around my bowel which will need further, more delicate surgery at some point.

My IVF consultant recommended an MRI 1 day
( My tubes are now blocked)
Bodys already been through a lot

No laparoscopy yet as would love a child

They could literally see it on the ultrasound it was that bad, as well as cysts, fibroids and adenomyosis. Had everything out last September fell sooooo much better. Never had any problems conceiving weirdly (6kids) but had ovarian torsion, cysts burst and ectopic pregnancy resulting in fallopian tube removal just before my last child.

Kidney scan… they found an ovary cyst, that went but another one appeared

I went for an ultrasound and as they were saying “now we can’t diagnose from an ultra…. Oh.. you have endometriosis”
it showed kissing ovaries and numerous endometriomas, went for an MRI and I have stage 4 deep infiltrating endo and adenomyosis

Thanks so much
And so sorry to hear of your losses

Dya mind me asking what age u were when you did ivf ?
& if u did long protocol ?

Thanks heaps

Dya mind me asking what age u were when you did ivf ?
& if u did long protocol ?

I 'think' I finally started my 1st round of IVF at 39. This was after multiple delays in my GP doing any testing and refusing to refer, despite me having 2 MC's at that point. Then a year long wait to get NHS funding for 1 round, then another 8mths for an appointment.

I had multiple rounds of IVF and think they were all long protocol. TBH, I'm not sure what a short round is? I recall the 1st round I had to return to the clinic ever 2/3 days for ultrasounds. The 2nd and subsequent rounds, were quicker and didn't need such close monitoring. I assume, because they were less worried about hyperstimulation syndrome.

Diagnosed by laporoscopy after several years of symptoms ds1 conceived 12 months later. I'm now stage 4. Diagnosed with adenomyosis on my 4th lap last year