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Treatment plan

3 replies

Gettingbysomehow · 23/03/2025 12:17

I desperately need a treatment plan and a proper discussion with my GP but they refuse to see or speak to me. I keep messaging the surgery to discuss my needs all I get is a stroppy locum on the phone who will only discuss the symptom of the day ot address the issue.
The issue is surgeons will not do my major surgery until my anaemia has been fully investigated and resolved and my hb is 120. My GP surgery refuses to sort out a plan to this end.
They just keep giving me iron pills which have not raised my hb by even one point in 6 months so obviously not working. I have not been referred for investigations anywhere despite asking numerous times. In desperation I had a private iron transfusion which raised it a bit but nowhere near 120. I asked for a stool sample test which came back negative to blood.
I had to be taken by ambulance to a&e at the weekend because I was in terrible pain and had not been able to eat for a whole week or get out of bed, I was using a bucket for a toilet by my bed.
A&e said its the gps responsibility to control your pain and they should have referred you to rapid response when you were stuck in bed and they sent me home after giving me some food and a drink.
The GP surgery was fully aware of my situation and did nothing.
I feel I need safeguarding or something. Has anyone got any ideas as to what I can do. I can't go on like this.
I don't feel I'm being treated like a human being anymore.

OP posts:
Greybeardy · 23/03/2025 15:33

an awful lot's going to depend on what the surgical problem is/what the planned operation is/how bad the anaemia is and what's causing it/what other medical problems you have. Depending on what the planned surgery is it may well be the surgeon/pre-op team's job to be sorting out the anaemia - if the surgical problem is the cause of the anaemia it sometimes just isn't achievable to get it back to normal. However if the anaemia is totally independent of the surgery then it should have been managed before referral. If the pain is being caused by whatever the surgical problem is then it's also needs surgical input into the management - not much point in plodding on with painkillers if the operation's the thing that will fix it. It may be worth discussing with the surgeon a referral to an anaesthetic pre-op clinic to see if they have any ideas re. what's sensible in terms of investigation/management/perioperative risk.

Gettingbysomehow · 25/03/2025 09:34

Its a hip replacement, its so bad I can no longer walk on it and my right leg is numb due to all the trapped nerves. . The hospital says they will not operate until my HB is 120, I can't get it above 115.
I finally got to speak to a GP yesterday who said I have to go for a colonoscopy and an endoscopy to see if there is any internal bleeding going on.
The hospital had an MDT meeting and said no surgery until the cause of my anaemia has been found.
Well at least things are moving forward now. I nearly lost my job over the delays and lack of communication.
Thanks for replying.

OP posts:
Greybeardy · 25/03/2025 10:40

it's a fairly common scenario. It's important to know that they're not about to do major surgery on someone who actually has a much more urgent problem that needs fixing. Also a good outcome from surgery means being in the best condition possible pre-op and a target pre-op Hb of 120 is standard starting point. Blood tests need to be interpreted in the context of a patient's medical history though and sometimes we end up accepting that 120 just isn't going to be achievable and proceeding so long as the customer accepts it does make it a slightly higher risk procedure - the anaesthetic clinic is sometimes where we can put that all together more easily so if/when the scopes are normal it may still be worth exploring that if they're still not so keen. In the meantime, while you're waiting, it's really important to try and stay as fit as possible, so if there's anything else you can be working on (smoking/weight/diabetes control etc) then that'll all help when you do get the date. (doi: anaesthetist, but one who's parent's joint replacement got postponed for similar reasons and it turned out to be absolutely the right thing).

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