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Handhold please- tired of feeling so poorly

51 replies

Poorlyandsad · 23/02/2025 22:10

TW: some fairly graphic health issues/procedures described

Hi all,

I want to start by saying I know many people have a much worse situation than me. But I just feel so poorly and I have two small children and not enough help. NC given outing medical and personal info.

I had umbilical hernia repair surgery on Valentine's Day. Since then I've been feeling feverish, nauseous, having night sweats, feeling faint, struggling to eat, and completely wiped out. My DH is due to be going away for a few weeks for work on Thurs leaving me home alone with our two DC (1 and 3). Already not a great situation but manageable assuming the surgery went OK.

Went to see the nurse who checked my wound (evidently not very well sadly), said it wasn't infected, and i probably had a UTI so given some antibiotics for that. Took my dressing off the next day and it was pouring pus and very red and angry. Went to the out of hours GP on Saturday who checked the wound and said cellulitis, doesn't look great but borderline for IV antibiotics. Sent home with some oral antibiotics and a marker line around redness. Woke up this morning to significantly more pain, redness, and swelling. Rang 111 who fiddled about with me putting me through various teams over a few hours until I got sent to the hospital surgical assessment unit.

By now so nauseous I haven't been able to eat, drink much or take my painkillers so in agony. I get there and have to sit in a chair for a few hours (to be fair much less time and much better situation than many face)but was just in so much pain and feeling so poorly it was awful, and being surrounded by incredibly poorly people that clearly should have been admitted was just awful. No one was allowed to eat in case they required imminent surgery.

The junior doctor saw me and said looks like very bad case of cellulitis, 48h of IV antibiotics. Shuffled back to my chair then called in by the consultant a few mins later who checked my wound and immediately said - it's an abcess and we are going to have to surgically drain it. Immediately went and got all the stuff, gave me local anesthetic, and drained it. I will spare you the horror of the details (I am not squeamish but genuinely it was horrifying) but they told me during the process there was a lot of necrotic tissue there and it was lucky I came in when I did as it was very serious. He then told me it was a very bad abcess and should have been sorted out under general anaesthetic but he wanted to spare me the risks of that and get it dealt with swiftly. Then he said - no IV antibiotics, you can take the ones the OOH GP gave you, off you go. Just go to the GP every day for the next week to get them to check your wound. Now back at home and have bloody pus pouring out of the dressing which isnt properly sealed (maybe deliberately?). I've just had enough, the carpet is now covered in bloody pus whivh is running down my legs.

My DH is trying his best to support me but is having to work very long hours ahead of going away and thus makes me feel guilty (not deliberately) at every stage and isn't able to help. I just feel like absolute shit still, in pain and feverish, and the idea of potentially being in sole charge of our two DC in a few days time is horrifying. I'm just so tired of all this and just want to be better.

Ahhhhhhhhh.

If there's any one on here who knows about what I should do about bloody pus escaping, should i try to put on a new dressing and seal it, do let me know. I can't face ringing 111 again.

Thanks for bearing with my rant that doesn't even include all of the dramas and other ailments but is still a novel!

OP posts:
MolluscMonday · 24/02/2025 12:53

How are you @Poorlyandsad ?

Poorlyandsad · 24/02/2025 14:58

Thanks for asking @MolluscMonday , and thanks everyone else for all your comments which I still haven't made it through because I feel so poorly still. Woke up this morning with wound all hard and red again, red more expansive than yesterday. Went to GP who said she thought the abcess was recollecting and sent me back to the surgeons at the hospital. But they have been dismissive and I've been sat in a chair about 6 hours now without seeing a doctor (and only having my obs done an hour ago which is step 1 of the process) despite the unit being very quiet. I guess I'm probably low priority but even so that wait seems a bit mad given the situation.

The nurse who did my bloods told me I should just go and see my practice nurse as I had the abcess drained yesterday so I didn't need to be here. I said I'd seen the GP this morning who said she thought it was recollecting and I needed to go to the hospital urgently. She shrugged her shoulders, looked like she didn't agree at all, and then did the bloods.

Most of the staff here seem to be struggling with basic empathy and kindness, no doubt because they are burnt out from horrible pressures, but it feels pretty brutal when you are in pain and feel really unwell. Sigh.

Luckily DH has supplied me with tasty sandwiches and a large bar of chocolate so that's cheered me up.

OP posts:
MolluscMonday · 24/02/2025 15:45

Oh love, i’m so sorry. That is utterly shit.

Matrixremooted · 24/02/2025 16:02

I’m so sorry OP, what a horrendous time you’re having of it! You can hear how unwell you are just by your posts and I really hope that things improve soon.

Most of the staff here seem to be struggling with basic empathy and kindness, no doubt because they are burnt out from horrible pressures, but it feels pretty brutal when you are in pain and feel really unwell. Sigh.

Being burnt out is absolutely no excuse for this kind of behaviour- I think we make far too many excuses for the NHS and I’m sorry again that you’re having to deal with this on top of being so unwell.

MêmePasPeur · 25/02/2025 10:03

How are you doing OP? Hope things are a bit better.

Poorlyandsad · 26/02/2025 23:43

MêmePasPeur · 25/02/2025 10:03

How are you doing OP? Hope things are a bit better.

Thanks all for the kind messages and for asking after me @MêmePasPeur. Sorry for not coming back sooner but yesterday was another bad day as I spent it in A&E with a feeling of pressure like someone was trying to crush my chest, which then developed into chest pain. Luckily all clear on anything serious and received decent care which was great after the horrible care I'd had from the surgeons. But they can't explain what it is other than possibly a virus and/or my body being under huge strain from fighting the infection. I've woken up this morning a bit sniffly and my family have a cold so I guess maybe it is that but my body is struggling to cope with it. No chest pains today and starting to feel healthier which is great but I was told today by the practice nurse I will have to go in every day for the next two weeks to get dressing changes and keep going likely every other day, tapering down, for 6-8 weeks. I'm just feeling very low really. But thankful to be alive and relatively healthy, currently cuddling my baby and feeling grateful. And grateful for the kind thoughts from people here. ❤

OP posts:
MolluscMonday · 27/02/2025 08:00

So sorry @Poorlyandsad. Have been thinking of you.

This is a hunker down time. Call in every favour, outsource anything you can, get easy food in, let CBeebies take the strain and nap whenever you get the chance. You will come out the other side eventually, promise. Spring is coming.

Is your DP still going away?

Poorlyandsad · 27/02/2025 12:35

MolluscMonday · 27/02/2025 08:00

So sorry @Poorlyandsad. Have been thinking of you.

This is a hunker down time. Call in every favour, outsource anything you can, get easy food in, let CBeebies take the strain and nap whenever you get the chance. You will come out the other side eventually, promise. Spring is coming.

Is your DP still going away?

@molluscmonday yes sadly he still has to go but he managed to delay it by 4 days which is something. Currently trying to piece together other support options with family but everyone has their own lives and commitments of course, it's not easy. I've also been told by the nurse that part of the wound is getting worse and the tissue is sloughing so I kinda feel this will be my life forever :-( But just trying to be grateful for my relative health, my family and friends, and my little ones.

OP posts:
MolluscMonday · 27/02/2025 22:30

Wondering how you’re doing now @Poorlyandsad?

It won’t be forever, even if it feels like it. One hour at a time and you’ll get there eventually, promise.

Dora26 · 27/02/2025 22:40

use the telly as a nanny without an ounce of guilt

Poorlyandsad · 01/03/2025 11:29

Thanks all. I'm back in hospital, 12h in A&E and now waiting in the surgical bit again. Feeling very poorly and sad!

OP posts:
TheSpottedZebra · 01/03/2025 13:18

Oh gosh, you poor thing! Have you been seen yet?

MêmePasPeur · 02/03/2025 18:23

Consider your hand held xx

MolluscMonday · 03/03/2025 13:20

Oh @Poorlyandsad i’m so sorry. Any news?

RobertJohnsonsShoes · 03/03/2025 20:54

Get well soon xx

ItsCalledAConversation · 03/03/2025 21:03

Gosh just read this thread @Poorlyandsad you poor thing.

MêmePasPeur · 04/03/2025 16:52

Really hope you're sorted out and feeling a bit better xx

MolluscMonday · 05/03/2025 22:29

Thinking of you, @Poorlyandsad

Mischance · 05/03/2025 22:43

Jeez ... what is happening to our health service?! If you had got proper active care when you first presented to the medics all this misery could gave been avoided.

I am currently at risk of infection due to a recent hospital procedure and the doc there said that if I got certain symptoms I was to go straight to A&E and not waste my time ringing the surgery.

What a mess it all is. Wishing you a speedy return to health.

ItWillBeDone · 05/03/2025 22:55

Hope you're doing OK OP

Poorlyandsad · 08/03/2025 21:38

Hi all, sorry for lack of updates but have been feeling exhausted and sorry for myself. Also have been trying not to dwell too much on being poorly as am now home alone with the small people so just trying to get on with everything as best I can.

After my last post A&E sent me back to the surgeons who hacked some more bits off me (less dramatic than it sounds!!) and gave me some new antibiotics. I then had another trip in again for follow up (the first proper joined-up care I've had!). Since then I've finally started feeling a bit better- yippee! And positive reports from the nurses on the wound starting to heal.

I'm feeling pretty worried about the state of the NHS from this experience I have to say - so many big issues:

  1. Initial infection from surgery that should never have happened
  2. A week of multiple visits to health care professionals none of whom spotted the serious infection until it was turning necrotic and septic
  3. A failure to administer IV antibiotics or admit me to properly get the infection under control even though I was so unwell
  4. Doing surgery that should have been done under general anaesthetic under local without informing me in advance that that was the case and obtaining informed consent
  5. A series of poor bits of advice/actions on antibiotics and wound care that resulted in a new infection, blood everywhere multiple times, and me not being able to breastfeed my baby as my GP prescribed me some rather wild antibiotics that in any case all the doctors at the hospital thought were completely inappropriate for the purpose.

Not to mention when I last went to the hospital the consultant said I needed a checkup with my original surgeon the following day and instead he asked me to attend in 10 days time. Gah.

It just feels like the system is on its knees, like that way we all get when completely overwhelmed and your decision making and organisation becomes poor due to chronic stress and exhaustion. So it's all just chaotic. I am very thankful though that I'm still here, I'm safe, and I can cuddle my two little ones.

Thanks for all the support everyone, I really appreciate it.

OP posts:
Maria1982 · 08/03/2025 21:52

Just seen your update. Oh my lord, you poor thing, you have really been through the mill. So glad to hear you are finally feeling a bit better !!! Handhold and remember to take it as easy as you can while your husband is away (no herculean house tidying, lots of fish fingers for dinner ..).

Maria1982 · 08/03/2025 21:52

And errr yes, the state of the NHS at the moment is… worrying.

Turmerictolly · 08/03/2025 22:41

This is shocking and I really hope the worst is over for you. When you feel better, please complain to the practice manager at the surgery and also Pals at the hospital and escalate if necessary.

SilverpetalShine · 09/08/2025 22:54

Poorlyandsad · 23/02/2025 22:14

Also the idea of having to go to the GP every day for a week with someone having to take me as I can't drive, my baby not being able to co sleep with me as normal, and not being able to play with my kids or be with them properly is just making me feel so guilty and sad.

Sanitary towel over the dressing, tape it on. Baby nappy over the dressing is a further option. Get your hubby on line and get him to order all supplies required for your dressings for a few days. Try boots, Micropore tape, two rolls. Large Melolin pads. Come in boxes of ten. 10/ 15 cm square. Ring the ward that just discharged you tomorrow and ask for further dressings for him to collect tomorrow. If you're still in this state tomorrow ring 111 and ask for nursing or paramedic support/help with the dressings. Your gp might order this too.
Can your husband postpone his trip given your level of illness? If that's not possible get the phone book out and call /parents, siblings? Friends? Is there anyone who can co-ordinate a group of helpers/ visitors to help out? That's what we do when a mum of young kiddies is ill. Perhaps they could bring or prep meals? Call your health visitor on Monday and let her know your predicament. She may be able to get help from community services for you. Make contact with your GP and let them know the hospital have referred you back to her care and that you need a wound check on Monday. Explain that there is a lot of puss. They should have contacted her electronically but don't rely on that. Keep an eye on your temperature four hourly and look out for any confusion and fever, report those things straight away, go back to a n e if necessary. You can wash your wound tomorrow with any wound wash they've set you home with. Other wise use tepid salt water. Try to keep the water out of the wound it's self. But wash all the puss away, dry yourself carefully and let your skin air a bit, so it feels drier not damp, just a minute or so. Put a clean dressing on. Keep drinking water. I hope you feel better OP. Whilst your DH is here just set him to the tasks and ask a relative or friend to come and help you both if your able. I hope you feel better soon and please please get plenty of rest...