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Worried about thyroidectomy

7 replies

Flashylights · 09/02/2025 14:57

I got diagnosed with a benign thyroid nodule a few years back and was told to go back to GP if gets bigger. It has got bigger and I had an ultrasound which says it's growing down into my chest and I'm going to need thyroidectomy. I know the stats say it's a pretty safe operation but I'm terrified. Has anyone had this done? Do you have any tips for getting through it all?

OP posts:
BerylG · 09/02/2025 15:01

Not personally but my 80 year old mum had the op last year ( her tumours were not benign). She was only in hospital one overnight. The scar/bruising afterwards looks pretty scary but her recovery was good and even at her age she healed quickly and there's no sign now. A friend's 20 ish year old daughter also had the same op around the same time and all good.

RosesAndHellebores · 09/02/2025 15:08

I had it about 34 years ago due to Graves disease. Absolutely fine. I was back at work after two weeks. All I have is a very fine scar around the base of my neck.

Boredmum24 · 09/02/2025 15:11

Both myself and my son. We've both made full recovery

CaroIus · 09/02/2025 15:14

I had mine removed in 2021, along with a massive tumour. I was terrified but, honestly, it was fine. Stayed in hospital one night and recovered at home. I did get a post-surgical seroma so had to be drained but that was easily manageable too, but did involve a trip back to hospital for a few hours.

Don’t underestimate the recovery time. While I did well, I ended up taking six weeks off work when I originally thought I’d be back after two.

Pre and post surgery, your team is likely to do some tests on your vocal cords to check for any damage. This involves a probe going down your throat- not pleasant but doesn’t take long.
After surgery, I struggled to speak for maybe three days, and my voice was quite croaky for maybe a week, but returned to normal after.

Eating and drinking was also difficult for a few days as swallowing was difficult. Soft cool foods like yogurt were best. I also relied on those drinks with the squeezy sports cap- kept them in the fridge so they were nice and soothing on the throat.

You’ll also likely be placed on a high-dose calcium tablet for several days. Again, not a big thing. Getting used to taking l-thyroxine daily can take some time and it’s important to have regular blood tests so that dosage levels can be adjusted, as needed. For the first few weeks, I’d get these episodes where I’d get exceptionally tired and shaky but the went once my l-thyroxine dosage was correct.

My incision was very large (the tumour was almost 800g) but scarring is minimal. I’m feeling much healthier now that I’ve been in l-thyroxine for a few years. I definitely suffer from the cold now though- didn’t use to, but it’s probably the. Biggest side effect I have now.

Happy to answer any specific questions you have. Look, surgery is never pleasant, but if it’s needed, you’re better off getting it out of the way as soon as possible. My biggest tip would be to accept that you might need longer than you’d like to recuperate, but you will.

Flashylights · 09/02/2025 15:33

Thanks everyone, this is helping me feel better about it!

OP posts:
Flashylights · 22/06/2025 06:52

I've had a CT scan now and ENT surgeons keep asking me if I can breathe and swallow ok, which I can, and then telling me my trachea is bent out of shape but it's ok becasue I can breathe. They don't want to operate at my nearest hospital in case they need a thoracic surgeon to help dig it out, so I'll have to go to the teaching hospital instead. I've got used to the idea of having it done (compared to the alternative of not being able to breathe any more!), and work have been ok about it.

What I wasn't expecting to have difficulty with is how other people have reacted. One of my friends thinks it's all lovely that I can choose to go to a "better" hospital. I've tried to explain it's not a choice but she's determined to see everything as glowingly positive. Another friend has a long list of professionally and self diagnosed illnesses and she's always wanting to talk about it, she seemed thrilled when I said I'd need surgery. I feel like nobody wants to listen to what it's actually like, and just put their own spin on it and tell me what to think.

OP posts:
Flipflopflipflapper · 05/12/2025 13:52

Hey @Flashylights I wondered how you got on with your surgery…? I’ve had an assessment today and been told it’s likely a thyroid nodule, and this is pushing my trachea to the side. I need a uss and ct… so I’m on your path to surgery I think and wondered how yours went and how you’re doing now?

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