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Kidney disease ckd 3

20 replies

twiddlingthumbs69 · 05/02/2025 20:00

Just been diagnosed with this through a blood test. I was mightily surprised

Just wondering how many others are out there?

Had no idea anything was wrong, is it just one of those things as we get older?

I'm well confused. Have a relatively healthy lifestyle, don't smoke or drink alcohol. Diet could be better but not overweight.

Just wondering if it's par for the course really?

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MadamMaltesers · 05/02/2025 20:05

I have been diagnosed with ckd stage 3b last week. Due a biopsy to find why my kidney function has taken a nose dive since I'm apparently quite 'young'.

CoastalCalm · 05/02/2025 20:08

3b here as a result of dehydration and them using dye during a scan when kidneys were already struggling

twiddlingthumbs69 · 05/02/2025 20:11

@MadamMaltesers crikey! That sounds uncomfortable.

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Covidwoes · 05/02/2025 20:11

Hi @twiddlingthumbs69 have you only had one blood test? My mum (in her early 60s) was told she may have this based on an offer result which showed in a blood test, but she then had another blood test, and her eGFR was fine! It can fluctuate a fair bit apparently.

twiddlingthumbs69 · 05/02/2025 20:12

I'm assuming it's not reversible?

Heard nothing from the GP at all. Only reason I know is because I looked up my blood test results online.

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twiddlingthumbs69 · 05/02/2025 20:14

@Covidwoes yes, just the one. That's interesting. I was quite dehydrated at the time. I remember thinking, when they took the bloods, that it was drawing slowly. I thought then I should have drunk water beforehand.

Hopefully I'll hear something from them and get another test.

No idea it could fluctuate, it's all new to me

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TheFormidableMrsC · 05/02/2025 20:16

I was diagnosed with this completely out of the blue, from a blood test that was for something unrelated. I was so shocked. I had had a pretty heavy Christmas a few weeks before and drank and ate a lot more than normal. I went away, had a totally dry month and drank tons of water and had a really healthy low salt diet. A retest said I didn't have it . I was absolutely gobsmacked that that could happen.

Recently a friend had something similar happen and it turned out to be a medication she was on for an unrelated issue. Now back to normal. I would definitely question it.

Bubblegumtatoos · 05/02/2025 20:17

What is your eGFR result?

Covidwoes · 05/02/2025 20:18

Sorry that should have said 'an eGFR result', not 'an offer'! EGFR can definitely be affected by fluid intake. I'd ask for a repeat blood test.

HurtleTurtle30 · 05/02/2025 20:28

twiddlingthumbs69 · 05/02/2025 20:14

@Covidwoes yes, just the one. That's interesting. I was quite dehydrated at the time. I remember thinking, when they took the bloods, that it was drawing slowly. I thought then I should have drunk water beforehand.

Hopefully I'll hear something from them and get another test.

No idea it could fluctuate, it's all new to me

I have polycystic kidney disease and have regular testing, your kidney function can fluctuate quite a lot. My last consultant visit my function dropped to 35% (I’m 45 ) from 65% I’m terrible for drinking enough so my consultant asked me to make
a concerted effort to drink more. I went back for another test 4 weeks later after drinking much more fluid and it was back to 50% (I say percent but it’s the filtration rate or whatever they call it). So definitely worth another test.

twiddlingthumbs69 · 05/02/2025 20:28

@Bubblegumtatoos it's 54. Whatever that means

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twiddlingthumbs69 · 05/02/2025 20:33

Cripes. So it's definitely hydration dependent then.

Wish I'd thought to drink before I went for the test.

Cholesterol is high too so I'm expecting a call back on that.

Just looked at DH results from May. His kidney results were high but he didn't hear anything from them about that at all.

It could be the meds I'm taking. I take a Nytol every night, and have done for years.
I know!!! It's bad but I just can't sleep at all without one. Obvs it gets metabolised by the liver/kidney so I'll try and cut down to half a tablet to begin with and try and ween off.

Feel pretty stupid really if I've caused this myself

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Bubblegumtatoos · 05/02/2025 20:34

Not far off 60. They will repeat, definitely stay hydrated before the blood test too.

Mine fluctuates between 60 and 80.

See what your next test shows.

Chocaholic1216 · 05/02/2025 20:36

My mum has kidney disease and is on dialysis now which she does at home 3 times per day. Let me know if you have any questions. Her GFR had to drop down to around 9 before her doctor started to insist she started dialysis asap. Most of her other markers were ok so maybe that’s why he was willing to wait so long

twiddlingthumbs69 · 05/02/2025 20:41

@Chocaholic1216 I'm so sorry to hear that, your poor Mum. That must put a strain on all of you 🌷

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Chocaholic1216 · 05/02/2025 20:44

twiddlingthumbs69 · 05/02/2025 20:41

@Chocaholic1216 I'm so sorry to hear that, your poor Mum. That must put a strain on all of you 🌷

She deals with it as positively as she can but she does find it tough as it restricts her freedom a lot with having to stay close to home all the time. She could have got a kidney transplant but she had breast cancer recently and they don’t let you have a transplant within 5 years of cancer at the hospital she goes to

Fordian · 05/02/2025 20:50

A high egfr is good, '>90' means all good.

We don't routinely inject CT contrast dye below 40 for CT scans; and even then, at 40 we'd check your last few egfrs for stability. If you're in known kidney failure and on dialysis, we can give you the dye knowing you have dialysis lined up within 24 hours.

twiddlingthumbs69 · 05/02/2025 20:54

@Chocaholic1216 that's so hard on you all l, and there's me banging on about my piddling results. Life is shit sometimes. Sending you love x

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Greybeardy · 05/02/2025 21:38

OP, the results need interpreting in the context of why they were taken, what the rest of the test results are, and what any old results show. You may not have chronic kidney disease at all (but that's why the clinical context is important and that needs an HCP to interpret, not just plugging the numbers into Google or even looking at the printed interpretation with the results). Hope the GP is able to advise properly.

twiddlingthumbs69 · 05/02/2025 21:49

@Greybeardy thank you. They were taking as part of a general check up.

A little knowledge is a dangerous thing, as they say

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