Likely going to be told I have Functional Neurological Disorder

[Tilly915]

I've had weird symptoms for weeks now. Limb weakness, leg not functioning, eye flickering, wet myself in sleep, limb shaking, tinnitus, pins and needles, pain. All on rhs. Had MRI of brain and spine which ruled out anything structural, which I'm glad about. Haven't had follow up with neuro yet but I'm fairly certain he will say it's functional. It came on when I was very, very stressed. I guess I'm just pissed off that this is happening. I feel like my body is falling apart and I've no idea why. I'm so glad my MRI is clear, but equally I don't want to be given a diagnosis of something that's so stigmatised and just want my symptoms to go away. I feel so low, and just need to vent. Feeling really, really hopeless.

You do not know what their diagnosis will be. There are further tests that might be ordered. Bide your time.
I am sorry you are having these distressing symptoms.

I had no further tests after the mri.

The neurologist told me this is what I 'probably ' have.

I've just been left with zero follow up.

Have you had any blood tests? I had muscle twitching, pins and needles, tinnitus and was exhausted, and turned out to be extremely vitamin B12 deficient. I have regular injections now but when I get close to needing one the tinnitus returns with a vengeance. Your symptoms sound more extreme, but it can be quite variable in how it presents (I now know). I think a functional diagnosis should be a last resort, after a considerable array of tests to rule out other things.

Wishing you better health.

I have similar symptoms. Took a few years but it turned out to be Lyme Disease and anaplasmosis.

I did everything right. Sought medical attention when things suddenly went south, as it were. Very hard to get listened to. I was told it was FND and my GP told me, "You can take the further blood tests that the neurologist has ordered but I guarantee nothing will be found. We not know the mysteries of the human mind."

Took 'em anyway. Then it was all systems go. I'm not saying that is what is wrong with you but sometimes you have to be persistant.

The other thing that people underestimate is, "How do I afford it? Do I just dose myself up and carry on?"

Wish you the best, OP.

I'm in a similar boat to you OP.

It's so crap. Sudden onset of symptoms - I 'fizz' all the time down the front of my body. Feels like I'm plugged into an amp and that fuzzy sound is my body - the frequency can be high or low. Myoclonic jerks, bouts of feeling faint

Bloods, ECG, EEG, physical examination, MRI head all clear. Have been told it's non-epileptic attacks. Nothing degenerative, not MS/Parkinsons/Alzheimers etc..

They tried to tell me it was stress, prescribed me an anti-depressant (it didn't work, obviously, as I knew it wasn't stress). Tried Baclofen, also didn't work on the jerks. I'm now on Clonazepam which has helped reduce the jerks but not the fizziness and that's the bit I struggle with the most.

Neuro said I probably won't ever get a diagnosis and that most of his patients never do.

Got an MRI neck and spine after pushing - would prefer to rule things out, otherwise I'll be going private! There's a LOT more to the above, but that's the TLDR version.