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Worried- vulvar cancer/VIN

29 replies

SleeplessNights03 · 16/12/2024 07:16

I'm terrified I have vulvar cancer. Last week I saw my GP after noticing some brown marks on my labia, and got a referral to a gynaecologist specialising in vulvar disorders who I saw on Friday. The GP didn't think a referral was needed but I pushed for it as I wasn't happy to wait and see.
The gynaecologist was very thorough. He noticed a whitish, slightly raised patch on my perineum and said I should apply Trimovate cream for 6 weeks in case this was due to a fungal infection and then to come back for a follow up appointment. If the patch was still there he would do a biopsy as it could be VIN. He also said it could be normal but I can't seem to register that.
I'm petrified. I'm fixated on the worst case scenario. He said that it could be nothing at all but everything I've read suggests that this discolouration of the skin is due to vulval cancer/VIN. He said it was not Lichen Sclerosis as there was no evidence of sclerotic changes.
Has anyone had a similar experience? I know googling is the worst thing I can do but I'm trying to find reassurance (and not succeeding).
One thing worth mentioning- in the last couple of years I have occasionally used Eumovate ointment on the perineum if it felt itchy, which it might 2/3 times a year. This was very occasional- but I've read ointments like this can cause hypo pigmentation- can anyone shed any light on this?

OP posts:
SleeplessNights03 · 21/01/2025 07:35

Thanks also to @livingdownsouth and @Bideshi for sharing your experiences. I'll update after I've seen the consultant on Friday.

OP posts:
UntamedShrew · 24/01/2025 08:24

Good luck today @SleeplessNights03

SleeplessNights03 · 24/01/2025 15:16

Thanks @UntamedShrew
I had the appointment and the biopsy. The biopsy itself was surprisingly okay-the injection definitely stung but it was over fast. Now the anxious wait for results begins.... I was told anywhere between 10-14 days but they're going to call me when the results come in, which worries me as I'm going to be terrified every time the phone rings!

OP posts:
FairTurtle · 29/04/2025 15:20

Hey. Just wondering if this was OK in the end? What was it? Going through similar

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