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Raynauds advice

20 replies

FlakyJadeSnail · 04/12/2024 11:10

Can anyone else who suffers from this give me any advice?

I have always been quite an easily cold person. A few years ago I lost weight intentionally and since then my circulation has got a lot worse. Last year I had terrible chilblains on my feet all winter. This year I am having raynauds attacks on my hands and fingers where they go completely white and it’s quite painful. I try to do all the things I’m told which is keep warm and not expose them to rapid temperatures too quickly. I have thermal gloves and socks but I am getting this indoors when I am trying to work from a computer. I can’t type with thermal gloves on. Does anyone know of something useful or some gloves that you can type in?

I had a Doppler on my legs a few years back I don’t have vein circulation issues. I have normal blood pressure and on no other medication and don’t have any other health conditions I’m aware of so I assume this is nothing serious

OP posts:
TheYearOfSmallThings · 04/12/2024 11:14

Have you lost too much weight?

I used to get Reynauds when I was skinny, then I (unintentionally Sad) put on a good stone in weight, and now I just don't get Reynauds anymore.

When I did have it, those stick on self heating toe warmers inside good boots were a life saver.

FlakyJadeSnail · 04/12/2024 14:59

TheYearOfSmallThings · 04/12/2024 11:14

Have you lost too much weight?

I used to get Reynauds when I was skinny, then I (unintentionally Sad) put on a good stone in weight, and now I just don't get Reynauds anymore.

When I did have it, those stick on self heating toe warmers inside good boots were a life saver.

I am not too thin I don’t think just a healthy weight for my height probably at the higher end of the range rather than the bottom or even the middle. If I put on a stone I would be overweight. It has made it worse though so I wasn’t planning on losing more, certainly not in winter!

OP posts:
TheSpottedZebra · 04/12/2024 15:13

Fingerless gloves? The beloved-on-MN cashmere turtle doves wrist warmers?

I have Raynauds too, and mine is SHOCKING this year, but I've also just been diagnosed with another associated autoimmune thing. But I'm wearing gloves, keeping warm, and still I have corpse hands.

But I have also lost weight. I'm not underweight by any means, but before I was a bit over.

IsThisNameTaken · 04/12/2024 15:17

Highly recommend turtle doves - mine are on all the time at the moment except when eating or washing my hands! I'm also on nifedipine (only one per day, but Dr said can go up to 3 per day if necessary), which seems to be helping a bit but I'm still getting white fingers on days when it's particularly cold.

TigerRag · 05/12/2024 13:44

You can get those touchscreen gloves which may help?

OAPapparently · 05/12/2024 13:53

Medication? I take nifedipine for mine and it really helps my hands. It doesn’t work so well for my feet though so I always wear socks and slippers at home.

Poisonwood · 05/12/2024 14:06

Alpaca wool really helps. Also layering socks. Wristwarmers. Biggest thing is reducing stress.

fruitpastille · 05/12/2024 14:20

Heated blanket over you and a warm drink plus get up and do a couple of minutes vigorous exercise e.g. star jumps regularly. Could you have a plug in heater in the room you are in? Personally I don't find wrist warmers help that much - I need to keep the rest of me warm.

Icarus40 · 05/12/2024 14:42

I get horribly cold hands when working from home - my fingers are regularly covered in chilblains.

A hot water bottle helps. I keep it on my lap and move my hands down to it regularly!

I wear wrist warmers but these are not enough by themselves. I need to tuck a disposable hand warmer in there too. The reusable ones are too bulky and don't get/stay warm enough.

I go into the office a lot more in winter as they crank the heating up and I can work in comfort!

GrouchyKiwi · 05/12/2024 14:50

Most important thing is keeping your core warm. Merino base layers are great for this.

Echo fingerless gloves/wristwarmers, and proper wool socks (merino also good here). Natural fibres work best, but a fleece on top of wool is cosy.

I wear Uggs all winter and that helps my toes a lot, especially with wool socks.

FlakyJadeSnail · 05/12/2024 17:05

Thanks everyone very helpful. I am otherwise sick AGAIN so I don’t know if it’s something auto immune perhaps I will have to investigate . Good suggestions I will give a go

OP posts:
Bone11 · 05/12/2024 17:09

Rechargeable hand warmers in your pockets.

ScottBakula · 05/12/2024 20:09

I suffer from it too , the cold wet weather makes it worse but I also suffer in warmer weather too especially if I am inactive for a while. However I still get it if I am out walking
I agree with pp getting up and moving around helps if you are normally sat still.

I take Niacin ( vit B ) in the cold weather with helps a bit.
I find gloves can actually make things worse as I tend not to move my hands as much with them on.
Handwarms are great for short-term warming , especially ones like them
https://www.amazon.co.uk/HotHands-836-8342-Hot-Hands/dp/B00FQLL0IO/ref=asc_df_B00FQLL0IO?mcid=fb0d09aef6bb31438f72ed392c8a46e6&tag=googshopuk-21&linkCode=df0&hvadid=697195556283&hvpos=&hvnetw=g&hvrand=15534935441311713700&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9046631&hvtargid=pla-565953460958&psc=1&gad_source=1

I haven't tried them but they give you a idea what's available
https://www.amazon.co.uk/Cnkeeo-Rechargeable-Handwarmer-Electronic-Arthritis/dp/B0CB5ZQD57/ref=mp_s_a_1_1_sspa?crid=U9MWT0Y8TB8B&dib=eyJ2IjoiMSJ9.AkY0yeoRGYI6ob4errCfCuGQL2WL-0kGNY_yiwUyaGstrLxXf4NGjvDeZV7tbzqH0zJ_5BENwMkhGOwGflv5xnE_I0tj8ZNX3avxux4gBknGuyfPJNwsLaMr507VJ1vOkxxbFBusgMjzorVkhVEeKLVAXWn2pnqF6DUWpeswssTHX3Xieq9rrgw4sDPRJC23p793xPoq-6d4GnWzyjds9A.hYICs67X2GZdmSApFoQ--r_VDr0cHreTS9DkuthAH68&dib_tag=se&keywords=rechargeable+hand+warmer&qid=1733426025&sprefix=rechargarbel+hand+warmer+%2Caps%2C315&sr=8-1-spons&sp_csd=d2lkZ2V0TmFtZT1zcF9waG9uZV9zZWFyY2hfYXRm&psc=1

This mn page might be useful for you.
https://www.mumsnet.com/reviews/hot-hands-instant-hand-warmers-review

HotHands Hand Warmers - 40 pairs - 10 hours of heat - Air activated - Ready to use, 8368342 : Amazon.co.uk: Sports & Outdoors

HotHands Hand Warmers - 40 pairs - 10 hours of heat - Air activated - Ready to use, 8368342 : Amazon.co.uk: Sports & Outdoors

https://www.amazon.co.uk/HotHands-836-8342-Hot-Hands/dp/B00FQLL0IO/ref=asc_df_B00FQLL0IO?gad_source=1&hvadid=697195556283&hvdev=m&hvlocphy=9046631&hvnetw=g&hvrand=15534935441311713700&hvtargid=pla-565953460958&linkCode=df0&mcid=fb0d09aef6bb31438f72ed392c8a46e6&psc=1&tag=mumsnet&ascsubtag=mnforum-general-health-5223560-raynauds-advice

okydokethen · 05/12/2024 20:23

I've bought every potion, cream, sock and gadget for my daughter. Alpaca hair, cashmere etc

Don't bother with battery gadgets or hot water bottle type things as they tend to be a short lived fad.

Best thing that helps and this might not apply to you was keeping her feet clean and dry each evening, keeping toe nails neat, she uses a warming cream each night with fluffy socks on each night.
Her feet don't seem to heal as the blood circulation is so poor so any cut/grime/loose skin/soreness gets worse quickly.

Massage is really good for her feet before bed or when really cold.

Don't put socks on cold feet as it keeps the cold in.

Don't have breathable trainers because they get cold and damp and double socks daily.

Keep body temperature stable, no hot tubs or hot baths or barefoot on cold floors

urghhh47 · 05/12/2024 20:34

Feeling everyone's pain!! I have very severe Raynauds, can't take nifedipine anymore (although it didn't work for me anyway). I have to take a beta blocker for ectopic heartbeats, which makes Raynauds worse! And I'm skinny - also makes it worse! This winter is proving very difficult. I don't have any answers - I've already had a few episodes that have had me crying with pain this Winter 😥

urghhh47 · 05/12/2024 20:35

Honestly the only thing that works for me (other than exercising) is a hot bath or shower. Without a daily hot shower or bath I struggle to get my hands or feet to anywhere near normal temperature.

khaitai · 05/12/2024 20:48

This year I've invested in some Loaf sheepskin lined slippers and thick socks which is helping my feet a lot. I have a thing you put in the microwave which I keep around my neck. Haven't figured out hands yet apart from making constant cups of tea.

Thanks to the PP who said:
Don't put socks on cold feet as it keeps the cold in

I can't believe I've never figured this out before!

Meanest · 05/12/2024 21:44

I bought north face slippers and added sheepskin lining to the bottom to boot. I've not had chilblains on my feet since (about two years). My hands are another story, i do a lot of physical and messy work stuff that means washing them lots, so gloves aren't really feasible/it's two seconds before I take them off again.

I saw an article from a couple of years ago, Martin Lewis recommending (tho not Reynauds specific) electric fingerless gloves. I'm gonna try them.

StarDolphins · 05/12/2024 21:48

I get terrible chilblains & even red sores on my hands & feet. Also started with raynaulds last year too. Also when I’d lost weight.

I haven’t found anything that helps. Sorry to be so unhelpful but you have my sympathy.

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