Buzzing sensation in legs - help!

[lillyg34]

Help please! I have been having strange body sensations this year. Pins and needles. Numbness. Tingling etc.

I'm now experience buzzing in my left leg and a tingling patch on my left arm.

I've had an mri of head and spine a few months ago and it was normal. Extensive blood tests were normal too and no deficiencies. I have visual migraines too.

I can't help but think they have missed something like MS! anybody have any similar experiences, what did it turn out to be? Feeling so stressed about it all with no answers.

@Buzzybuzz ps. Your username 🤣

@lillyg34 lol yes thought i might reveal recognisable stuff on this thread. So thought new name was appropriate 😂

Right, so the biopsy I think is rarely done via NHS and, as far as I recall, it was done by a professor who had a research project going to do with small fibre neuropathy. The difference it made to me was mostly to do with knowing a bit more about what was going on. NHS had suggested controlling symptoms with amitriptyline or pregabalin, but nothing by way of digging deeper to work out a cause or potential cure. The private neurolgist suggested pretty much the same, or knowing the issue was an inflammation, he suggested I could try a course of steroids or alternatively wait and see if things improved. I chose the latter, bacause weighing up the side effects of the medication, I wasn't too sure my quality of life would be much better ( I'm peri and already struggle with tiredness). Had things got worse, I would have tried the steroids, but things have gradually improved thank goodness. I found my buzzing is worse when muscles are in any way tight, so for a while I saw an osteopath regularly. I do pilates religiously and have changed from showers to Epsom salt baths. I have a low dose diazepam prescribed for occasional use from GP. That relaxes me enough to be able to do my job on a buzzy day or be able to sit through e.g. a flight. For me, it works well that I only take medication when absolutely necessary, rather than every day, which would have been the case with amitriptyline or pregabalin. I should say that two years ago I couldn't sit for long or do a job at a desk, my neck and shoulder buzz was way too uncomfortable. Now I can and life is almost normal :)

@Buzzybuzz this is really useful information, thank you so much for sharing. My neurologist at the time also suggested going on amitiriptyline, but we decided to give it a few months before going down this route. I am still a bit cautious about doing this due to side effects. I'm really pleased your life is nearly normal now. Maybe it's just a case of giving it more time! Definitely don't want steroids! X

I would say that amitriptyline and pregabalin are worth a try if your quality of life is affected, I have this too and I was finding the nerve pain/ buzzing etc was distracting me at work and stopping me from sleeping. I am on pregabalin now and it helps a bit, not fully.

Stress and anxiety absolutely are the worst things for my symptoms, but appreciate it's hard to not stress when you don't know what's going on!

Hope you find something that helps soon x