Vain2 vagina wall

[Worriedbex]

Hi. I'm new here so not even sure how I'll get notified if someone comes back to me. I have the worst health anxiety since my mum passed a few years ago from copd and blood poisoning. Anyway I've had low grade dyskaryosis for 3 years on the cervix, it's never bothered me as it's never gone to a higher stage, i also have high hpv. Anyway last week i received a letter starting i have vain2 (vagina wall) no explanation on the letter or anything! I went into panic mode so bad! Anyway i am 35, healthy (i did smoke but I'm trying to stop (today is my first today, so far so good) I've spoken to my dr, also spoken with the colposcopist over the phone to find out more information, which both have said its very very very unlikely to turn into cancer! Which made me feel so much better (they have having a meeting this Thursday to discuss what to do next. I did mention to those colposcopy lady i just want it gone. Out!

Has anyone ever had vain2 or even vain3 and it all been okay? I'm so so scared. I joined a group on Facebook too that is for vin, vain, and ain, and cin, put my post up and the group admin told me that my dr is wrong that she can guarantee it will come back after I've had surgery to remove it. She has scared the life out of me. Safe to say I've left that group and don't think it's very supportive at all.

Anyone?

Sorry you are worried but those terms mean nothing to me. Perhaps talk to gynaecologist?

Vain is the same as cin (on the cervix) but instead of the cervix, it's on the vagina wall. I'm planning on speaking with the hospital tomorrow as I'll have to have surgery to remove it. Just wanted to see if anyone fuse had vain

Op, I have Lichen Sclerosus and VIN is very often a co-morbid of it.

There is a group on FB called Lichen Sclerosus - UK - Support Group For Women and I think you’d find it very helpful to join as it’s chockablock with women posting about VIN.

The group also has a separate group covering VIN but I can’t recall the name of the group.

I know you must be really worried right now but although vin can become malignant it’s highly unlikely to do so.

Hello Thank-you, I'll take a look. Hope your okay now? I've not got vin, I've got vain, inside the vagina just under the cervix xx

Im Sorry, I didn’t realise they were different but even so I’d join the group I’ve mentioned as it covers all things vulval and vaginal.

as for me - I’m ok thank you. I medicate for my LS with a strong steroid ointment a couple of times a week and I hardly know I have it now. Not that it ever goes away by my symptoms are very manageable now I have the correct treatment.

Hi @Worriedbex not sure if you will pick this up. I've had HPV for about 15 years unable to clear it and generally just had low grade cell changes on the cervix in that time. However this year they found VAIN2 on the posterior vaginal wall (just under the cervix). I just had it removed and now waiting 6 months to see if it's deffo gone. How have things gone for you?

Hi. Thank you. Sorry I've only just got back. I hope you've okay? Did they say anything about what your chances are of it coming back or? I'm due to have a check up in January (next month) to see if it's still gone. Xx

Also when they removed mine they removed it via biopsy. Went back 6 weeks later to see if they biopsy took it all (it did) so didn't need anything else doing. Sounds like yours is in the same place as mine , just under the cervix. Also had low grade cells on my cervix for years due to high hpv. They think that's how the vain2 ended up where it was (just under the cervix) because cells on your cervix can spread to the vagina wall. I've read it if does come back it takes around 1-2 years or longer. Not within a few months of having it removed. I think I'm just worried now as my appointment for check up is next month (January) I've also been told vain2 is NOT CANCER. And the chances of it turning into cancer are extremely low. I hope your doing okay. I'll make sure to check this group everyday just in case xx

Hi @Worriedbex I hope you are well. Good luck at your appointment in January and please do let me know how you get on! I'm not too sure what the chances are of it coming back, I think it depends on what treatment was used to remove the VAIN? Different treatments are more effective. The good thing is if it comes back we can repeat the treatment. It's very slow growing, I think my VAIN 2 cells were there for at least 4 years before they finally found it.