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my nans doctor rang me yesterday to tell me my nan has lymphoma.

14 replies

AnAngelWithin · 11/04/2008 10:55

and its breaking my heart. I love my nan so so much. we are incredibly close. talk every day on the phone at least once a day. nans not been well for a while. I did have another thread on here about it all but i cant find it to add this to it, so sorry. anyway, she started with a chest infection a few months ago, and a different doctor came out to see her and referred her for chest xrays and blood tests. Cue a few weeks of tests etc, and then doc wants her to go for a ct scan and a camera down her throat and up the other end. nan very tired and being sick and having diarrhoea all the time by now. Anyway, my nans been very confused about everything and i rang the doctor a couple of weeks ago to have a word with her about it all. nan had given permission for the doc to speak to me. She told me what was going on and said that they wanted to rule out leukaemia and/or internal bleeding. Anyway, my nan went for the CT scan last week. Yesterday afternoon i had a phone call from the doctor saying that my nan has lymphoma. She was going round to tell nan after she had spoken to me but wanted to know if me or someone else could be there when she told her. I live 2 hours drive away so I rang my aunty to be there. My nan is devastated. As am I. I don't know what to do. The dc said the next thing to do is an urgent biospy on her lymph gland/node?? to find out what kind of lymphoma it is. I am scared out of my mind. So is nan. I've looked on the NHS wesbite and I can't make sense of anything. All I know is its when the lymphocytes in the blood turn cancerous. I rang nan this morning and we couldn't talk properly for both of us crying. I don't want to lose her, but shes getting so frail and lost so much weight she's quite weak. I'm not sure she would cope with chemo if she has to have it. Oh god I feel so sick. I've not slept all night. Neither has nan. I'm going to go see her at the weekend. I want to be there NOW though not that I can do anything I suppose.

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AnAngelWithin · 11/04/2008 10:55

sorry thats a bit long and not split up very well is it. sorry. my heads all over the place.

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Chocolateteapot · 11/04/2008 10:59

AAW, I don't have anything helpful to say but just wanted to say how sorry I am for you all. Is it possible that you can change your plans so you can get there today ?

AnAngelWithin · 11/04/2008 10:59

i cant drive. i would have to lug 4 kids on a train for 4 hours. would have to take them out of school. DH wont be home til 7

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windygalestoday · 11/04/2008 11:04

angel what about phoning the macmilln helpline or a hospice? i did that when my mil was ill,im sorry for your news ((u))

Chocolateteapot · 11/04/2008 11:04

No, I see you can't till tomorrow I am so sorry, we heard yesterday that my MIL's cancer is back, she's in Spain, distance always seems to make these things much harder.

One thing I have learned from MIL (this has been going on for over 2 years now) is never under estimate how some people can keep on going when things seem bad.

AnAngelWithin · 11/04/2008 11:15

i can't lose her. it will push me right over the edge

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AnAngelWithin · 11/04/2008 11:15

sorry about you MIL chocolateteapot. distance makes it awfully hard

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AnAngelWithin · 11/04/2008 12:05

just spoke to my nan again. she doesnt even know if she wants treatment if they offer it

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Chocolateteapot · 11/04/2008 14:50

Sorry I vanished, I had to go out.

I guess your Nan is in shock at the moment and it will take a few days for the diagnosis to sink in. It is very early days at the moment, you have only just heard and it is a gut wrench the moment you hear, different people react to it in different ways. Give her a few days to get her head around it and then see what she wants.

Sorry you are going through this xxxx

AnAngelWithin · 12/04/2008 09:46

hi chocolateteapot. don't worry about it. My sister in law turned up til 5.30 then DH was home.

i'm totally beside myself. i haven't slept since i found out. i can't eat or anything. i don't know if i should go to the doctors myself. not that they could do anything. I don't really want to be drugged up with anything.

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madamy · 12/04/2008 09:55

AAW, there are a couple of types of lymphoma so you really do need to wait until they know which sort she has as treatment, prognosis etc are vastly varied.

Try having a look at this website for more info.

TREBUCHET · 12/04/2008 10:02

My auntie, ds godmother was diagnosed with non hodgkins lymphoma back in Oct, she has since had a double dose of chemo. Last week they said she has a small nodule left so they are going to give her radiotherapy. Some kinds of lymphoma are totally treatable. It's not necesarily a death sentence. Hope its a trouble free journey for you today. I'll be thinking about you.

AnAngelWithin · 12/04/2008 10:12

thanks. i will have a look at that link madamy. thanks for that trebuchet. hope your aunty makes a full recovery.

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AnAngelWithin · 14/04/2008 13:17

i went to see my nan yesterday. shes lost so much weight. shes so scared and i tried so hard to hold it together. I managed it til we got in the car to leave and I haven't stopped crying since. we just have to wait til we know what sort she has. I have had a look at that link madamay and have bookmarked it. it looks a good website, but more information than i can deal with at the moment! but thanks, it will come in useful once we know more about nans condition.

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