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Closed Angle Glaucoma Help

34 replies

Eyeworries2024 · 04/07/2024 19:00

Dh has just been diagnosed with this and we need to know more about it. Can anyone help please? It seems worrying and he's been given a booklet by the RNIB which really hasn't helped!

OP posts:
Eyeworries2024 · 15/07/2024 17:23

I've got the letter back from the hospital. Can anyone help translate the medical terminology please?

OP posts:
theeyeofdoe · 15/07/2024 17:52

Eyeworries2024 · 15/07/2024 17:23

I've got the letter back from the hospital. Can anyone help translate the medical terminology please?

Sure, post the content (without names/DOB)

Eyeworries2024 · 15/07/2024 18:21

Thank you so much...

OP posts:
Eyeworries2024 · 15/07/2024 18:23

Trying to attach

Closed Angle Glaucoma Help
OP posts:
theeyeofdoe · 16/07/2024 13:32

Hi OP.
So the visual acuity is the amount you can see on the chart with glasses on.
In his right eye, your husband can see one line worse than 20/20. He's still within driving standard.
In his left eye, the vision is poor from the amblyopia and a scar on his macula, which the bit in the eye which allows you to see fine detail.

Then underneath, it describes the glaucoma drops he's been given.

Under MUOSGL it described the condition of the eye, so
Right eye - has primary angle closure glaucoma (PACG) - the primary bit means it's not secondary to another eye condition
Left eye has primary angle closure (PAC), this hasn't progressed to glaucoma.

Then the IOP (intraocular pressure), measured by goldman tomometry(GAT) - which is a certain way of measuring eye pressure. This pressure is good. Not high at all. Normal is usually less than 21.

"Both PI patent" means the new drainage channels they have created with the peripheral iridectomy are draining well.

The it describes what the optic nerve heads look like. This is where you can see glaucoma damage, in this case the notch is where the cells have been lost.

The visual field picks up areas of vision loss and your OH has some visual field loss in the RE where the notch can be seen on the optic nerve head.

The doctor has then asked to do another visual field test in 4 months.

So the bad news is that your husband has some vision loss his good eye from glaucoma. The good news is that the drainage hole is working and the pressure in the eye is now within normal levels, which will hopefully stop any further loss, especially with the addition of the glaucoma drops which have been prescribed.

I say hopefully, as the relationship between pressure and vision loss in glaucoma isn't really understood fully and sometimes you can have lower pressure and have vision loss.

In 4 months time, they will repeat the visual field test and hopefully the vision loss will be stable. In which case he can just keep using the drops. If it isn't they may recommend another drop or surgery. It's worth noting that they are always less keen to operate on the good eye of someone who only really has one good eye, even with something so straight forward as a lens extraction as any surgical procedure has a chance of going wrong.

HTH

Eyeworries2024 · 16/07/2024 21:11

@theeyeofdoe I cannot thank you enough for taking the time to explain the terms in the letter. You've actually managed to make it sound more positive than we thought it was. Thank you so much, it's really appreciated. The next hurdle will be reporting to the DVLA.

OP posts:
Tarrarra · 16/07/2024 21:19

Just to sympathise and reassure you really, my ds has secondary glaucoma as a result of an eye accident. He was on the drops for 4 years with no side effects, but had surgery to make a hole in his eye a few years ago and just has regular check ups now. He had to have the op as he kept forgetting to use the drops so the pressure went up. Surgery now is much better with the lasers.

theeyeofdoe · 16/07/2024 22:48

@Eyeworries2024 It is MUCH more positive than I thought when you initially posted.

coronafiona · 16/07/2024 22:50

Make sure he is given presevative free drops. Preservatives damage the eyes but are included in lots of eye drops.

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