you know we have these BIG mumsnet campaigns WELL I VOTE THEY NATIONALISE THE CF TEST IN THE HEEL PRICK TEST

[dickswife]

is that enough for a thread title

and I am fio2, fiofio

but for my own ds2 they said he was 'not at risk' so didnt bother testing

I think we need to make this national and mumsnet needs to help

1 in 20-25 people are carriers of CF maybe more, so its not uncommon at all and its best to catch it early

My sister who had cf died 6 years ago friday. She would have LOVED to know some good had come of her death amd from what I read on MN and elsewhere its the heel prick test that will make a difference

and hopefully gordon will understand

They do it routinely in our NHS trust now

well they do not everywhere

i think this should have been rolled out to the whole country now (as from October last year?).

My daughters 'red book' makes reference to CF testing so I'm guessing the testing is in place?

well in kent they are not testing unless youb are at risk

and we are not apparently
(ds2 7 months, me sister with cf? and not at risk)

bump bump

I am not sure if it happens where I am, but it didnt for DS1 (3.1) in Berkshire and DS2 22 months in N Yorkshire.

We had to endure in excess of 7 borderline tests for DS1 before we got the all clear at 6 months plus and it was horrible living with the fact that I could have given him a life limiting illness. So I agree if it was covered in the heel prick test it would be better.

Also medication could be administered before any damage has been done by an acute attack

I'm sorry for your loss.

In Scotland (Edinburgh) both my DH and I had tests done as part of my routine AN care to determine whether or not we were carriers of the CF gene. Babies at risk are then tested at birth. Genetic counselling is also offered routinely to couples who are affected.

I was very surprised when I moved to England that it wasn't the case here, although they did do the test as part of the heel prick test when DD was born (in Leeds) last June, although we knew she would be OK.

I'm appalled that it isn't even a national test in England and Wales.

can it covered in heel prick test? if so, then it should be included.

if there's ever a time to get this passed it's with Gordon Brown as PM. I have a CF child, she was diagnosed at birth due to bowel obstruction but certainly on the CF Trust site you read of LOADS of babies who are poorly for months or years before diagnosis and early treatment is vital to avoid lung damage.

fio look here it is national now...

It can be covered in the heel prick test and is being slowly introduced around the country. My dd3 who is 9 wks was diagnosed through the heel prick test three weeks ago. Actually she had three heel prick tests as the bit for CF kept showing inconclusive. (sp?) Am so glad it was picked up early so i totally agree it needs to be routine for everyone much quicker.

and we had no family history or anything to show that it could happen to us so thank goodness for the heel prick. At least she won't have to endure lots of illness before getting a diagnosis.

That is great news that it is now national - my nephew had a test for it last week - aged 19 months - and fingers crossed it is all ok - but really it should have been screened for earlier considering the stats on incidence rates.