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Pancreatic Cancer - support needed for sister of sufferer

5 replies

Clementine1 · 07/04/2008 17:41

Are there any support groups specifically for pancreatic cancer sufferers and their siblings. Friend has asked me to help find her online support if possible. Thanks.

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Blandmum · 07/04/2008 17:44

there is an organisation called Pancan which has a website. Please be aware before you recommend it that Pancreatic cancer is a real bastard and people will be discussing death quite a bit.

Has this person been put in contact with a Macmillan nurse? They can be very supportive (my dh has pancreatic cancer)

Clementine1 · 07/04/2008 17:47

oh sorry to hear that Martianbishop. Yes they have been given very little hope unfortunately. He has been sent forward for a drugs trial and will know this week whether he is accepted or not. They know the inevitable will happen regardless. Thanks for that link.

OP posts:
Blandmum · 07/04/2008 17:49

It kills around 99% within 5 years. Dh has done better than predicted, he was given 3-6 months in Dec 2006, but things are getting worse quite quickly now.

The drugs they use can help to prolong life, but they are not going to cure.

He also needs to get hooked up to some good paliative care as that will improve the quality and quantity of his remaining life

Clementine1 · 07/04/2008 20:05

Thanks for that - yes my friends brother has been given 3-6 months too. Life is a bitch!

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yorkiemom · 08/04/2008 15:04

Sorry to hear about your friends brother.

My dad has pancreatic cancer that has spread to his liver. We found out in Jan.
At the moment he is doing well. and the chemo is doing its job.
When I first went on the Macmillan site, I found the pancreatic cancer website just too upsetting, as MB has said it talks alot about death.
I have found real support right here, mb and others have been fantastic, realistic but not too harsh.
I would advise your friend not to "google" too much, unless she's feeling very brave, as it just totally depressed me.
Our Mac nurse has been very supportive, and the best advise she gave was to say don't plan too far ahead, just take things one day at a time, and enjoy every day as much as possible.

Mb, I'm sorry to hear that you dh is'nt doing too well now. Is he having any chemo, or treatments at the moment ??

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