Why am I so thirsty?

[Notverygruntled]

I went to the GP last week for the second time in six weeks (rarely go) and following 3 blood tests. GP not sure what to suggest, has said they will call me after consulting colleagues so, whilst waiting, thought I would consult the hive mind.

Shortly after Easter, I became quite thirsty.
Became particularly keen on juice. I had a blood test scheduled as I hadn't been feeling great for a while (I presumed it was anaemia
as I'm prone to that), and asked that they also test for diabetes. Bloods came back clear.

Thirst persisted, so I went back to GP, who suggested testing for calcium in case levels were high. Had another blood test, no issues. He also asked me to keep a bladder diary before returning.

I am now at the stage of drinking 6-7 litres of fluid a day, most of which seems to end up down the toilet! I am waking 3-4 times at night thirsty and needing the loo and the cycle is repeating (I get through a minimum of 2 x 500ml bottles of water a night and generally 2-3 glasses of juice, squash or milk).

I am shattered and really not sure how to get through a pending very busy few weeks at work. I am having to time drinks/loo breaks around travel and meetings and having to choose between being thirsty or needing the loo. Haven't heard back from GP so will chase on Monday.

Her suggestion was Sjögren's syndrome, but I don't have any joint pain. I am wondering about diabetes insipidus, but she didn't raise that. I am 50 but because I have regular periods and no hot flushes, apparently I can't be in peri menopause (she is the second female GP to say that to me, but that's something else to sort once this is....).

Any suggestions? She's said that it is not normal but doesn't know where to refer me to. Feeling somewhat down about it and no idea how/if to raise it with work as it just sounds a bit odd!

I tried to message you earlier but couldn't work out how to from the app .

My microadenoma was checked regularly for around 8 years with annual MRI scans. As it hadn't grown any further in that time, I now just see my endocrinologist annually to check things such a blood sodium levels. You may have to go for more frequent blood tests when you first start desmopressin as too much can be unpleasant.

I have to watch out for any changes in vision as if the tumour grows, it will probably press on the optic nerve. I have annual eye tests as there's glaucoma in my family so I pay extra and have one of those scans to give me some reassurance that the optic nerve isn't compromised.

Now I don't pee every 10 minutes every day and night, I don't bother telling anyone about it as it doesn't cause me and issues. Apart from as I said previously, life and travel insurance.

If I can help in any way, just shout .

You get free prescriptions for all meds with a medical exemption certificate for DI.

@poppym12 thank you for sharing so much information. That's good to hear you managed to avoid surgery and that the DI isn't an issue for you anymore. I get to collect my prescription today (yay!) and then GP is prescribing from then on, so will check re the prescription @PleasePickMeToWin .

It is odd that it's not more widely known about although clearly more so on Mumsnet
judging from the early replies I got! Having had a day without meds yesterday, it really struck me how awful it makes you feel (had previously put everything down to lack of sleep), I just felt quite washed out all day. And very hard to explain to people as a result.

Hopefully that will no longer be necessary once the meds kick in!

Have a great weekend and thank you again,

Notverygruntled, if it is craniopharyngioma, then give me a shout. My son had this.

Thank you, @BlackSwan, that would be much appreciated. I haven't heard re follow up as yet, so it may not be for a couple of weeks.

How are you getting on with the desmopressin @Notverygruntled ?