Hi all,
how do you get over / deal with barely being listened to by your consultant team?
I am a type one diabetic on an insulin pump. My control is overall pretty good, despite a few rough years as a teenager (even diabetic teenagers need to rebel..!) Im 33 now.
Over the past year I’ve had issues with eating - managing one meal per day, feeling full, horrendous fatigue and weakness, vomiting, nausea etc.
I was supposedly put forward for a gastric emptying study (GES), to see if it’s diabetic gastroparesis (damage to the nerves causing delayed emptying to the stomach). One of the endo consultants agrees that is what it sounds like.
Fast forward to now… I’m sat in hospital after ending up in resus with everything taking its toll on my diabetes once again. I end up on the endo ward and they’re all saying ‘you need to figure out life stresses’ and ‘you need CBT’
I asked how is my mental health stopping me from shitting more than once every week, but I didn’t get an answer to that one.
how do I deal with this? I want to be able to advocate for myself like a pro here, but I’m so exhausted and drained, how do I even start? This isn’t mental - this is physical.
diabetes is a leading cause of gastroparesis, so why am I being challenged from trying to work out what’s going wrong?
sorry for the waffle, I’m so disheartened I’m trying to not cry on the ward - otherwise they would go down the MH route..!