Worsening back pain

[Offonagadwaddick]

I’ve quite a few health conditions which have left me disabled. Recently my back has deteriorated and my pain increased. I’ve got scoliosis, kyphosis, damage to the sacroiliac joints, facet hypertrophy in my lumbar spine, and a symptomatic tarlov cyst.

my back muscles go into spasm if I stand for more than a couple of minutes. Sitting on the wrong chair or without my feet up hurts. It’s making doing my job really difficult.

No consultant has ever bothered with my back. I’m waiting for surgery on the cyst. But the rest is generally ignored or they shrug. I’ve even got wedge shaped vertebrae but there’s no recent fractures so they’re not interested. I’m 41.

Has anyone got any suggestions for helping myself. I do Pilates and swim.

Wanted to bump you since I'm doing a scoliosis search on here..
It sounds like you ARE helping yourself with pilates and swimming (I'd have thought front crawl was best by the way). You need to push for an orthopaedic back specialist consultant who will listen to you. The problem lies with your GP if you're not getting referred. RNOH Stanmore if you're London area. Can you pay for an initial private scan and chat if that doesn't work. Do you have any recent imaging of your back?
Sorry you're suffering. Scoliosis is sh.t

Not sure how old you are, but wondering if you've had a bone density scan.
@charitynamechange is right about pushing for an orthopaedic back specialist consultant and definitely physiotherapy.

Can you afford private physio? That's the only thing that has helped my back. NHS physio was awful and made it worse.

Pilates is good but you really need physio led pilates otherwise you could be aggregating the issue every time. Not all exercises work for all conditions.