My tooth unexpectedly broke in half yesterday. I knew being on high doses of prednisolone I’d need some dental treatment but expected only a filling or two (the usual when I’m on pred) Being immunosuppressed I need to have it dealt with quickly to avoid additional infections (I’ve had 3 in 2 months). Except I’ve now woken up with a sore throat and lost my voice. No dentist will see me if I’m sick. I’m freaking out a bit cos I can’t eat or drink anything right now a) cos of tooth and b) cos of throat.
I honestly feel like my body is giving up on me. This is all on top of the reason I need to be taking such high doses of pred in the first place which isn’t improving. The immunosuppressant medication is what makes me vulnerable so many infections.
I am scared right now. I am literally just sitting it all out waiting to see what’s going to happen. I have no one to talk to about this in real life because people just say “you’re always sick”, “ you should be used to it by now” or my favourite “at least it’s not cancer” .
My work are losing patience and have no understanding anymore (they think disability should improve it seems) and the government don’t care to support people like me (because disability only exists in the movies )
I’ve been told not to temp fill the tooth at home because it could cause bacterial growths and infection. It hurts. I feel unwell and I still have kids to sort and work to do (they’re kindly allowing me to work from home today to sort this out - deadlines unchanged so unrealistic).
I need a break. I need support. Neither of these are possible. What do I do?