Anyone know anything about Intrapulmonary Shunting?

[JellyNump]

Ds died at 9 weks from it follwing an op. We met with a Professor at childrens hospital here in Bristol. What I do know is:
Its a reaction caused by a shock/bump/fall (in this case breathing tube knocking against his larynx during op)
Children who have it may fall over, then faint
Children who have it cry but seem to hold their breath
Other than that, not really sure

Jelly, I can't help, but I'm very very sorry to hear that.

Thank you, it seems to be a 'mystery' thing

Did this happen recently Jelly? Are you getting any help from the hospital?

This was in 2005. We went for meetings and there was an inquest, ds actually died in Brighton Childrens hospital as ex H and I were visiting inlaws. They just said they really dont know much about it but i've never met anyone else who's child has it or anything like that

Jelly, I had a quick look around the net but can't find anything at all that isn't v complex medical paper. It seems to be a catastrophic inability to absorb oxygen, rather than a syndrome or something that lasts.

I'm so sorry.

If you are now wanting to know more about this than you did at the time - entirely understandably - I wonder if it might be worth going to your GP and asking him or her?

Off to bed now, I hope you're okay.

Thnak, yes it does seem that his lungs just shut down (i did once find an ok diagram) but there seems to be no real cause apart from the shock of the breathing tube going down his throat.....i would have thoughtthe preofessor we spoke to (who was fab) wouldave been more clued up than my gp, but i may try.

I can't imagine the state of mind you must have been in at the time, really. But I imagine that it's almost impossible to take in all the information, or ask questions that would make things clearer.

I think it's v likely your GP might not know right now, but he/she might be able to find out.

If not, you have probably been given the names of these organizations for bereaved parents at the time of your son's death.

But I wonder whether they might be more help now, in finding out, on your behalf, the details of how he died?

Friends www.tcf.org.uk/

The Child Bereavement Charity

Are you feeling particularly down about this right now? I read your other thread about the breakdown of your relationship, and I'm very sorry things are so difficult for you at the moment.

Please don't be shy of asking for the help you need.

I'm thinking of you.

Thinking of you jellynump. Hope you're okay.