Why is cystitis so hellish

[Shiningout]

Honestly I have quite a complex medical history and have been through many surgeries, procedures and illnesses. However cystitis honestly destroys my soul every time I get a bout I feel like I'll never be happy again! I end up in tears every single time. The worst thing is it's not even painful for me it's just this awful burning and throbbing sensation and not being able to wee without the stinginess.

I don't even know why I've come on here I'm just miserable. I do have nitrofurantoin so I've taken one of those and a d-mannose, plus two cystopurin sachets. Drinking lots of water and got a hot water bottle so I know what to do I just feel so grumpy and low 😭😭😭

Solidarity my love 😘

Thank you ❤️ I'm actually feeling a bit less desperate than I was earlier, I took so many drugs (prescribed and over the counter just to clarify!) that I think they are all starting to kick in already.

Azo Urinary Pain Relief tablets are great. I saw them recommended on a thread here and they really help.

Do you know what I think that's the only thing I haven't tried before, I've looked and I can get them on amazon so I'm going to order some. Thank you!

You're welcome, hope they help you.

Be warned though, your wee will be the colour of Irn Bru!

Get yourself to a urologist, and ask for Methenamine Hippurate. 1g 2x a day. It will change your life.

Have you read about Mannose D?

I'm very interested about this too, what does it actually do?

It worked for me, but it might not for everyone. Basically d-mannose is a monosaccharide (a sugar) that can inhibit bacterial adhesion to the urothelium after oral intake (tablets). I bought it online because antibiotics give me gut problems and thrush.

I take this every day too. It's brilliant.

I used to get cystitis every time we had sex but now it's only once a blue moon.

Even if I feel it coming on, I take an extra tablet and it kicks it into touch.

Life changing!

Yes I take a capsule every day - it's great but I do still occasionally get flare ups