Peripheral neuropathy

[Wolfiefan]

I’ve just been told this is why I have numbness, tingling and burning in a hand/wrist. No diabetes. No recent injury or obvious cause.
I’ve been told to wait and see if it resolves in the next couple of months.
Anyone had this and it’s resolved? Wondering whether to push for a scan.

Me.
Toes and lower leg mainly. Comes and goes in intensity. I feel it obviously most at night when lying in bed before going to sleep. Like a buzzing sensation.

I suppose I'm used to it now. I first spotted it in early 2020.

It'll take a couple of months to get an appointment with a neurologist so I'd push for one especially if it's causing problems with your day to day life.

My main issue it it’s my dominant hand. And the other one is already numb after being bitten by a horse as a child. 🤦‍♀️

Oh no.
Hope you manage to get an answer soon.

Yes I was fobbed if for months and months. Turns out from MRI i got by demanding the Dr put in writing to me they were refusing to refer me so I can take legal action. My spine is crumbling and pinching nerves. Can't open jars, drop things (including the baby in the bath) I fall over. I'm shitting myself now to my utter humiliation. Still being fobbed off and can't get seen by dr. Google tells me what I have can be slowed not stopped. By the time I get help I will be benifit dependent long term sick unable to meet the basic needs of my kids I expect

Oh Purple that’s absolutely bloody shit. I’m so so sorry.

Me. Neurologist couldn’t find a cause. Had it for years now. Still live in hope of finding a simple cure, like iron tablets or b12 supplements.

I have this but after a major accident so it hasn't resolved nor would I expect it to.

Physio has helped.

Had recent bloods. So not that.

Id want some tests to work out why....

The risk Idiopathic peripheral neuropathy (i.e. where a cause cant be found) is usually directly related to the length of the nerves, so much more common in feet and hands. And is usually symmetrical

If I had peripheral neuropathy in just one upper limb, I'd want tests to exclude carpal and cubital tunnel syndrome and nerve entrapment in my neck for starters.

Been told it’s not carpal tunnel.

Pay for an MRI if possible to exclude the likes of MS.

I had to do exactly that - I had dizziness, tingling in hands, feet and one side of head, burning feet, electric shock sensations, muscle spasms, myoklonus (sp?). The MRI scan ruled out MS, tumours, nerve damage, slipped discs etc. I paid £1.3k but worth it for my peace of mind. GP wasn't interested, I was told all the above are very common symptoms.

I do have several of those symptoms but have been told it’s fibromyalgia. I can see me going back to the GP at this rate!

Hiya,
I have severe nerve damage.
I have a brachial plexus injury to being proned (laid on front) for 8 weeks which means I have no feeling in my hands and next to no use of my left hand,
I have also had major nerves taken out of my leg due to surgical debridement due to gangrene - I have about 80% feeling back in leg so nerves CAN repair themselves however it has been a year and my hands have not changed.
I also have overall intensive care related neuropathy.
If it's painful I would be pushing for gabepentin/pregabalin or duloxetine/amitriptyline.
Also you need a referral to neurology and a referral for nerve conduction studies.

My symptoms were ignored by multiple GPs for over a decade. Because of this my MS was diagnosed very late which meant the disease had progressed significantly and my prognosis is much poorer now. If you have any doubts (especially if you ever had a memorable bout of glandular fever) don't wait.

I am on gabapentin. Oddly I may have had glandular fever. Not diagnosed at the time but given antibiotics (for suspected tonsillitis?) and had a reaction. Was later told I likely had glandular fever instead.

With that update I would 100% tell your GP you want referred to neurology and for an MRI, especially if the antibiotic you reacted to was amoxicillin.

I met someone recently who was told they had fibromyalgia for many years in spite of a huge family history of MS. They had MS and like me their symptoms and prognosis are much worse because of diagnosis and treatment delay. There are very effective treatments and lifestyle changes available now.

At the very least you might want to focus on:

1. Cut out dairy completely asap.
2. Cut out all red meat especially beef.
3. Get your saturated fat under 15g a day and focus on a whole food plant based diet.
4. Meditate daily.
5. Exercise daily without exhausting yourself.

@BurnerName1 thanks. I can’t remember. It was many many years ago. May have been?? Can I ask why?
Thanks to anyone who’s posted and sorry to anyone suffering.

Amoxicillin should not be given to someone with glandular fever - in my case I deteriorated overnight. I was told I had post-viral fatigue after the glandular fever when I was actually having my first relapse.

Usual disclaimer: this is not medical advice. Just sharing my story which is sadly based on bitter experience. There is ZERO benefit in not diagnosing and treating MS as early as possible and the medical community (particularly neurology) are finally reaching concensus on that. I hope treatment will be much earlier and more aggressive in the near future. There is also hope that a vaccine for Epstein Barr virus will be developed which may eradicate MS in the future. MS is a cruel illness but it is not a death sentence.

At the time I was really unwell and wiped out. But I was doing my A levels and we all were.

So sorry this is happening to you. Could you write to your MP about needing an urgent appointment/referral?