I find the NHS completely perplexing.
I have severe osteoporosis and take an injectable medication which my consultant says is optimal. 6 breaks in five years including two vertebra. The NHS will not fund the £2400 for a two year course of treatment because I do not reach the bar. I means I need regular blood test including ALP.
In the summer the ALP was high. I had always had a couple of glasses of wine a day exceeding limits but not hugely so. LFTs, ALT and GGT were marginally raised. This initiated huge fears about my liver function from the consultant's ITM3 Dr. Who referred for an urgent ultrasound (came through in 4 weeks) which was inconclusive, referred for an urgent fibroscan, NHS appointment came through in 4 weeks. My liver was near perfect with scores of 4.6 and 239 - very mildly fatty liver due to non alcoholic fatty liver disease. The liver consultant thought the referral was nuts.
Every blood test relating to my liver was done, every blood test relating to everything else was done. All twice. The abnormalities were the ALP and my cholesterol was through the roof. Evidently the osteoporosis meds (teriparatide) can cause hypercholastemia. No base line test is done when the medication starts.
The ALP remained and remains raised. The liver stuff made me give up alcohol and alter my diet, along with the high cholesterol. I have lost two stone and also have brought the cholesterol down a lot by diet alone.
As I already have thyroid disease, I saw a consultant endocrinologist to make sure the everything was properly titrated: vit D, levo, etc, and to get some ammo against going onto a statin. He ran the bloods again ALP still up. He recommended a full body bone isotope scan to rule out Pagets. Took 6 weeks to come through. It didn't rule out Pagets. Referred the report to my osteoporosis consultant because teriparatide is contraindicated with Pagets.
This was the first ime I spoke to her since the summer (6 month gap). She casually said "have you had an ALP enzyme test to identify if it's coming from none?" Er no. The ALP was from bone NOT liver.
A simple test was available and yet the NHS had money to spend on an: ultrasound, a fubroscan, and a full body bone isotope scan. The Osteo consultant said "oh if it's from bone, it's related to the teriparatide, it isn't uncommon".
The right hand simply doesn't know what the left hand is doing even without the waits. On that basis something has to be systemically wrong.
And they refuse to pay for my osteoporosis medication but piss thousands up the wall on stuff that isn't necessary.
Note: The ultrasound, fibroscan and endocrinologist appointment were paid for privately, despite the fact I was sent NHS appointments. Not because it was quicker but because the appointments worked better with my professional diary and the staff are more user friendly
Mother needs an urgent TAVI for severe atrial stenosis (replacement of heart valve). Issue identified October - CT scans and much more sorted quickly. Surgery expected by 31 March 2024 NHS.
It's perplexing but I don't believe it's about funding rather than competence and bureaucracy.