Directness from the Doctors!
Some really need to imagine being on the end of the phone call
i teach, a few years ago, my child had a rare condition that has huge range of complications.
After finding she was unable to produce correct levels of Cortisol she was admitted to hospital. Local hospital had her transferred to a bigger hospital so endocrinologist could assess her and the compensating endocrinology pathways which she had developed.
She was sent for a CT scan and back on the ward. Then a very busy hive of consultants, doctors and nurses and I was told that she would have to have a different scan so that the brain could be seen better. I naively, assumed it was because she had been unable to keep still or cope well with the Ct.
We were taken to MRI scanners. A very busy area… at around 4ish
was told that it would take 45-60mins
i was sat in waiting room, all staff disappeared, sat completely alone, no one to ask questions and she wasn’t brought out until 7pm
I was asking questions and told they had wanted more scans and different types. I didn’t think much of it as she had a rare condition and since 5 weeks old, we were constantly asked if they could bring more doctors and students and different specialists to see her. As most had only read about it.
I assumed it was more of the same.
Due to her severe distress and the affect on her stress levels I was allowed to take her home. I assumed that the consultant would call us back once they had worked out the endocrinology jigsaw
Doctor’s inability to be human
I was called in my lunch break to say she had a bed booked for her in the children’s hospital In the next town. Her Ct scan had shown a mass and why she had to have mri
the mri and shown she had a mass inside centre of her brain where the central membrane was malformed.
She should not have been discharged the night before but the ward we were on had been unaware of the problem.
The blood test that had been taken before we left was tested for HCG and was positive and confirmed that it was malignant.
I was told where to go and ward, and consultant, also to take belongings and other supplies with me. To get my young son to a family member as it wasn’t possible to have him with us.
Then they hung up
Im there in the staffroom, with my lesson prep for next lesson, and being told that my child had a mass and malignant
i just couldn’t comprehend what was said and got up, autopilot and my colleagues had heard as I didn’t think it would be anything other then normal,
i said the type of mass etc to the room, we are all scientists, then said I best go organise myself ready for the lesson and be ready for students who were due to arrive.
I went, set up, put books, worksheets and opened register let students in and started going through exam papers etc When the head teacher and deputy head and my head of science walked in and i couldn’t work out what was happening and why they were in my room.They said you need to go, but I kept saying it is ok, they let us home yesterday so they have it wrong.
They were packing me up, and kindly told me I had to go now as they had looked up what I had said, scientists- like that kinda thing- and they had organised a member of staff to drive me home and I cannot thank them enough as it didn’t register
when I arrived at the hospital with her and mentioned I was on my lunch break at school
I was told that they had waited until it was lunchtime to call me as they didn’t think I would answer during lessons.
I said it wasn’t the conversation that I was expecting or that no one was thinking about the situation for me.
That was probably worse than the conversation that I had when she was first diagnosed
Honestly, some doctors need to imagine being on the other side and hearing the news
I thought it would make a dark sense of humour chuckle… as it has a scale of shocking to absolutely wtaf has just happened