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Every woman in my family has had breast cancer:(

33 replies

LefthandRight · 01/01/2024 20:28

Gran died of it as did great aunts. My aunt has it and is undergoing treatment. Now I have found out my mum has it :(

Am I fated to have this?

Im 35. Can I ask my doctor to test me for the gene? But even if I discover that, what can be done? It seems like even a healthy lifestyle doesn't protect you?

OP posts:
Uglyboots · 01/01/2024 22:00

Please listen to @RandomMess - get your insurances (not just life insurance but income protection too if you can afford it) in order BEFORE making any inquiries into genetic testing. This is incredibly valuable advice.

tothelefttotheleft · 01/01/2024 22:07

rickandmorts · 01/01/2024 21:59

My mum, gran and aunt (mum's sister) have all had breast cancer but I was told due to the types they had it's not genetic. So I guess it's just bad luck? Could the same be the case for you and your family?

Do you know which type of breast cancer they had?

rickandmorts · 01/01/2024 22:11

@tothelefttotheleft my mum had DCIS, think my aunt had the same but not 100% sure. No idea what my gran had but she was old (over 80) when diagnosed

Growlybear83 · 01/01/2024 22:13

I've had a lot of breast and other cancer in my family and I had a single mastectomy and immediate reconstruction when I was diagnosed at 53. I had genetic screening because I wanted to know if I had a faulty gene that I had passed on to my daughter, but fortunately thst wasn't the case. I was told that she should start to have regular mammograms from her mid thirties. Because of the prevalence of breast, ovarian, and prostate cancer in my family, as well as several relatives with stomach and lung cancer, I was offered genetic testing without any issue, and I got the results in about a month. It's sure it varies by area, and I'm probably fortunate to live in London with hospitals which have excellent reputations for cancer treatment and plastic surgery.

One of the women I was I hospital with when I had my surgery had one of the faulty genes and had an elective double mastectomy, also with immediate reconstruction. She was due to have her ovaries removed a few months later.

I think it's very sensible advice to sort out life insurance before you enquire about testing, if that's something you would do (I've never had any sort of life insurance, so it's not something I considered.)

If you find that you have got a faulty gene and consider having a preventative mastectomy, you really wouldn't believe the amazing things that plastic surgeons can do. There are various options, including using implants and also your own tissue, which is a much larger operation. In my case, my breast was reconstructed using tissue from my tummy area and if I was to get changed in front of you, I don't think you could tell which was my reconstructed boob. Surgeons can also reconstruct fairly realistic looking nipples too.

It was a terrifying experience being. Diagnosed with breast cancer, and I can't describe how I felt when I was told I needed a mastectomy, but if I had known the treatment I would get, I wouldn't have been nearly as scared.

I would also contact Breastcancernow.org. They are a fantastic organisation and can provide a huge amount of support for anyone affected by breast cancer, from a very wide range of excellent leaflets thst cover everything you could think of, general nursing advice, and most importantly, they have. 'Someone like me' service where they will match you up with a volunteer who has faced exactly the same issues and decisions as you. The volunteers are highly trained and experienced and will talk to you by phone or email as often as you need them to to support you.

Dinoboymama · 01/01/2024 22:19

I am the only female in my family not to have had ovarian or breast cancer. There is a brca2 gene in the family, my GP referred me through COVID for genetic testing, I do not have the mutated gene which is such a relief. It also means my children cannot have it as it cannot skip people.

DirtyCarrots · 01/01/2024 22:31

Another way to look at it is to think we are so lucky to live in an age where they have discovered these types of risk factors and there is screening, genetic counselling and surgery available on the NHS to help. I have a BRCA1 gene and after 10 years of annual MRIs, I had my fallopian tubes removed in Nov 2022 and a preventative mastectomy and reconstruction in Sept 2023. Ovaries to follow in 2024. The whole experience has felt very empowering and the care was amazing - definitely the NHS at its best.

I hope get the answers and support you need,

LefthandRight · 01/01/2024 22:37

Thank you all, I feel much more settled reading your very generous replies xx

OP posts:
Goatymum · 02/01/2024 15:12

Definitely get the test done. My friend had the BRACA1 gene and had a double mastectomy with reconstruction and also her ovaries removed (this was more important to her as ovarian cancer much harder to detect).

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