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Hearing issues impacting my life. Can anyone relate?

36 replies

Maemi · 17/12/2023 11:55

I'd like to ask if anyone else suffers from hearing loss and how you manage it in social situations?

I've experienced a problem with my hearing for a decade now. I first noticed it when I started having to lean in when conversing with other people at work a lot or asking them to repeat themselves, but mostly in work environments like team meetings while in an open plan office. When I first noticed it, I went to see my GP and was referred to see a consultant. I had several hearing tests and my hearing was considered great with no issues. I was told that I might have problems with my eustachian tube, but not much is known about it so I would have to live with it.

I use the phrase ' problem with my hearing' loosely because I can 'still hear' sounds and would be considered 'high functioning' if that is an appropriate term here. I simply mean that if anyone had a conversation with me, they wouldn't notice it, save in only certain environments which I mention below. I only have regular problems making out the exact words people say and, as I'll explain below, occasionally hear the wrong thing so respond wrongly/inappropriately. I struggle badly in social environments, e.g. in bars and restaurants where there are secondary and tertiary sounds.

In the past few months, I've taken several crafts courses and having completed them, feel that I must have been perceived as a real prick by the other people as a result of my hearing. Examples include: having to be told the same thing a few times and then, as an example again, doing something that the instructor must have told us not to do (so it looked like I wasn't doing what was told, but rather was doing what I liked and then being gently 'told' and guided). Another example includes mishearing what someone said during casual, small-talk in a class and responding inappropriately.

I completely understand that making some announcement at the start of the class would solve much of this, but I am not deaf and can hear a lot. Hearing, to me anyway, is not binary. It is not a case of 'you can either hear the sound or not' it is affected by the shape of a room and a whole myriad of other contributing factors. I know that in some situations, I am fine; in others, I am possibly a person with some minor disabilities. I still have not figured out which scenarios or environments affect me the most, and because of this lack of understanding on my part, I am very reluctant to share my hearing problems with friends and family.

Perhaps it is a simple case of saying: 'Sorry All, I have a slight hearing impairment so apologies if I keep asking you to repeat yourself'. In all of my years, I have never once come across anyone who has had to say any such thing at work or in a class either, so have no idea how to manage this area of my life.

If anyone suffers from a similar affliction, I'd really like to hear from you.

OP posts:
MooseBeTimeForSnow · 04/01/2024 15:22

@inappropriateportioncontrol it is a Phonak table microphone. I’m wondering if they’ve stopped producing them as it isn’t on their website anymore.

inappropriateportioncontrol · 04/01/2024 16:33

@MooseBeTimeForSnow thanks.i have hearing aids but acoustics in the hut like church hall where I do yoga are A problem for me.

MooseBeTimeForSnow · 04/01/2024 16:46

There are lapel mics too. Maybe your instructor would be willing to wear one?

inappropriateportioncontrol · 04/01/2024 17:42

Sorry to be incredibly dense but would a lapel mike just increase volume , amplify his voice?
So it would be louder for everyone,?
Now I've typed that I'm thinking what else would it do ,?
Suppose I'm dreaming of blue tooth breathing aids

Rocksonabeach · 04/01/2024 17:50

You might also find that noise cancelling headphones is a game changer.

My son was born deaf and now has about 80% hearing but absolutely can not cope on a classroom of 30 he just can’t. He’s hyper focussed on sound and then processing it. He’s been 6 months with noise cancelling headphones when working in class. He can clearly hear the people on his table and the teacher who stand near it - but not all the other crap filter noise. We also use them at home when reading or doing homework so he can listen to me and everything else - car sounds, neighbours etc all filtered out.

The ones for the school cost about £60 and my home ones - similar brand and male were £35 on Amazon but I tried them I have to say they just were amazing. Clear conversations with the one talking to you but no ticking clock etc very soothing.

I hope a new hearing test shines a light on it and treatment going forward.

Rocksonabeach · 04/01/2024 17:52

This reply has been withdrawn

This message has been withdrawn at the poster's request

sunshinesupermum · 04/01/2024 17:57

Rocksonabeach does your son wear the noise cancelling headphones over his hearing aids?

Violinist64 · 04/01/2024 20:23

@Rocksonabeach it might be a good idea for you to ask for your post to be edited or deleted and rewritten as it is not a good idea to include a child’s name; especially as your son has a fairly unusual name. You can never be sure who is reading these posts.

Rocksonabeach · 04/01/2024 21:00

sunshinesupermum · 04/01/2024 17:57

Rocksonabeach does your son wear the noise cancelling headphones over his hearing aids?

No he doesn’t have hearing aids.

MinervatheGreat · 04/01/2024 21:26

“Perhaps it is a simple case of saying: 'Sorry All, I have a slight hearing impairment so apologies if I keep asking you to repeat yourself'. In all of my years, I have never once come across anyone who has had to say any such thing at work or in a class either, so have no idea how to manage this area of my life.”

As the above quote suggests, please overcome your reticence about declaring your hearing loss. I tell absolutely everyone I meet that I am a bilateral hearing aid user. I tell them to “look at me so I can lip read please!”
Folks are very helpful, very caring.

My NHS hearing aids are linked to Bluetooth so hearing on the phone is clearer now after years of struggling.

Do get your hearing tested again! Go get hearing aids, private or NHS.
Do become an ambassador for the deaf community.
Do live your life with more clarity. 🙉🧛‍♀️
Good luck OP.

rrrrrreatt · 04/01/2024 21:50

I’m in my mid 30s and I’ve worn hearing aids on and off since my late 20s, with a lifetime of ENT issues.

I have Eustachian tube dysfunction which causes chronic glue ear so I have moderate to severe hearing loss and get ear infections. They can’t fix the dysfunction (the surgery failed due to scarring) so I have surgery to put t-tubes in, they come out, I can’t hear and wear aids until I come to the top of the list again.

Don’t feel guilty for taking up NHS time or resources - hearing loss of any level really impacts on your life. It can fluctuate as well so it’s worth getting tested again.

I used to feel so embarrassed about my hearing loss, made worse by how well-meaning people reacted when I told them, but not anymore. It’s so frustrating and isolating at times, there’s no shame in wanting answers or to be accommodated by others. You deserve the best quality of life possible, we all do.

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