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Original poster

ME/ CFS ruining my quality of life.

26 replies

Workingmum994 · 26/11/2023 14:28

It’s in the title. I am stuck in a rut, I feel I have no quality of life at the moment.

Awaiting a webinar to obtain techniques on how to manage this cruel illness. I’ve looked into nutritionists but they are so expensive. I’ve quit exercise as it wipes me out.

What I can’t stop is work, I work 24 hours over 3 days and then I care for my little girl on the 2 days I’m off. My partner and I care for her together over the weekend.

I have noticed a decline recently. Everything wipes me out.

Please, does it get any better? I genuinely feel that I don’t want to live, but I’m not suicidal. I can’t quite explain it

OP posts:
DuchessDandelion · 13/01/2024 12:35

Beentherelivedthat · 12/01/2024 19:39

That sounds really tough. No experience at all of this but a friend of a friend had ME and breathwork really helped her - so much so that she retrained in it. I don’t usually go in for alternative/holistic therapies but if conventional medicine hasn’t helped then maybe it’s worth a try? Sure there’d be free resources online/on YouTube etc. good luck and hope you find a way to feel better x

There does seem to be medical evidence for why breathwork helps. It's the same as for meditation. In ME the autonomic nervous system & parasympathetic nervous system appears to get stuck 'on' in very reactive states.

Breathwork (and meditation), calm these systems and this seems to improve symptoms for many people.

No one seems to know why!! But I use both and they definitely help

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