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Brain tumor 6month wait

5 replies

fitnessmummy · 20/11/2023 18:53

My friend has been told she has a brain tumor. It's small and at the front - they can't operate with its location.

My concern is that they haven't told her what type of tumor it is, they've just advised her to go back in 6 months for another scan to see if it's fast or slow growing! This doesn't seem right.

She's had brain tumors before and they've always had a plan in place and been really informative and helped her get a plan together. But with this she just feels in limbo!

Has anyone heard of this before? It seems risky to me.

Thanks 😞

OP posts:
cloudfree · 20/11/2023 20:27

She would be well within her rights to seek a second opinion - perhaps from someone that has treated her before that she trusts?

fitnessmummy · 20/11/2023 22:27

cloudfree · 20/11/2023 20:27

She would be well within her rights to seek a second opinion - perhaps from someone that has treated her before that she trusts?

This is her next goal but I just wanted to know if it was common to wait that long

OP posts:
nocoolnamesleft · 20/11/2023 22:30

Well, it's not common to have had previous brain tumours. Perhaps information from those is influencing the plan?

volunteersruz · 20/11/2023 22:57

with some types of brain tumour eg. Low grade gliomas or meningiomas it’s not unusual to take a “watch and wait” approach because they are perhaps slow growing or unlikely to cause symptoms…or perhaps as in your friends case if it may be inoperable.They’ve found from post-mortems that many people die with brain tumours in situ that have never been discovered or caused any problems. I would imagine that if she has a history of past tumours that she may have access to a clinical nurse specialist..perhaps encourage her to ring back and ask for more info to explain the decision.

fitnessmummy · 21/11/2023 22:45

She's defo going back and requesting more information. I think the whole thing took her by surprise. I think that's their approach watch and wait but I'm not sure she's comfortable with that. Thanks everyone, she's the most amazing person.

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