Please bear with me as this could be very long!
My ds of 2 years has had eczema from 5 weeks of birth.It peaked when he was about 1 years and then declined and completely vanished by the age of 1.5.Initially i was told by gp that it was nothing, dry skin, milk rash etc and then finally the enlightenment came and i was given the works for treating the condition from steroid creams to bath oils etc.
Then something different started on his bottom that was dry and scaly but not like a rash as in eczema.He would scratch it and make it sore and this went on for some time.This patch appeared on the crease of his elbows and i went to see the gp again.I was told it was a fungal infection and to use steroid creams and moisterise.This made things worse and so i went back again and gp said its eczema and to go back to the original treatment and so here i am today.My beautiful boy's skin is covered in circular patches that flare up red and bumpy and often he scratches it and breaks the skin.When its not sore its dry and scaly and rough.Its all over his arm especially on the crease of the elbow, behing his knee and all over his thigh, on his neck lower cheeks and ears and is devastating seeing him suffer.To top it all up all ten of his finger tips are peeling off!The skin suddenly blistered up and all the tips peeled back and now all his fingers look sore and painful.I have tried to get an appointment with the gp but will have to wait, even then i'm not sure why i should bother with the gp.I feel so let down by them, there was no follow up, no care whatsoever toward my son's condition and each time being told a different thing was just unnecessary, and one gp never read the other notes and verdicts, they just went ahead and gave their explanations and its only my ds who is suffering as a consequence.I going to geta referal to a dermatologist as these guys are useless.I truely feel the steroids made it worse, but now i cant stop them as i need to use it to bring the rash down.I just dont get eczema and am not happy with this the current medical explanations for it, that its dry skin, it might go away, you have to moisterise, and thats it?why does it happen?whats the triggers?why does it get better and then worse?
When we go abroad to warmer climates his condition is fab, non existant, i feel so sad about this i am considering leaving England for good!I'm not sure what i'm looking for in this conversation, maybe just a kind ear to listen to my pain.