Please anyone with POTS?? Please help

[Queenoftheuniverseandgalaxy]

These are my daughters tilt table test results, does this look like POTS?

I am asking because her test was in January, its now been 10 months and we are still waiting to see doctor/for a diagnosis. Her appointment is in July 2024 so it would be another stressful year waiting.

Thank you

She has a definite Hr increase over 30 so probably. There's an FB group called parents of people with pots Uk that might be useful. Also pots Uk website. First line of advice is usually lifestyle changes. Lots of water, electrolytes, salty food compression garments (dd finding compression shorts helping) get up from lying down very slowly try to maintain strength with exercise lying down.

If you're anywhere near Coventry ask for referral to shamil yusuf. He has a pots nurse practitioner who is fabulous. Took us nearly 3 years to get there but she was so nice and helpful. Ultimately it was medication that enabled dd to function (fludrocortisone and midodrine in our case but there are others

Private rhuematologist- money well spent

Yep looks like pots, I developed this after covid last year. Helped a lot with ivabradine. I ended up paying to see someone privately because the nhs wait was so long but all my follow up will be back on the nhs. Could be something to consider if finances allow?