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Has anyone got late effects of pelvic radiotherapy?

2 replies

sallowsense · 17/09/2023 21:06

I'm 9 years post pelvic radiotherapy for cervical cancer. I don't know anyone in real life who had this and have long been discharged from the oncology team.

As expected my bladder and bowels have been iffy since the treatment. This last couple of weeks, I've had 3 episodes of blood in my urine - like a cut washed under the tap kind of look, not much at all. After some googling, it can be a thing with late effects of radiotherapy and a fibrotic bladder. I have all the other signs of bladder problems post treatment.

Problem is. I'm almost paralysed with fear of getting it checked out or saying it out loud to family as the fear is very triggering for them too.

I don't know who to go to - the oncology team? My GP (who can get an appointment?), wait and see / do nothing as it might be part and parcel?

Has anyone else had similar? Or can tell me what to do?

OP posts:
AugustSippedAwayLikeABottleofWine · 17/09/2023 23:48

Have you contacted Jo's Trust (the CC charity)?

Octaviathethird · 18/09/2023 00:36

I would go to the GP expecting, and insisting, to be referred under a 2 week wait but I would also email the oncology team hoping they would respond with advice. I had radioiodine which can be a risk to bladder health. I understand the worry about doing anything about it, and the desire to stick your head in the sand, but if it was anything serious, it would be better to know sooner so it can be dealt with.

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