Awful head rush/pulsation in my head when I stand up

[Headrushh]

I want to preface this by saying I’ve been diagnosed with Idiopathic Intracranial Hypertension for years. I haven’t had these symptoms before so insure if related but definitely could be relevant.

I have had awful head rush/swooshing pulsations in my head (my hearing also goes funny with this for a good 5-10 seconds) if i go from sitting to standing or getting out of bed in the morning.

Do any medical people know what this could be from?

i’m now worried it could be high blood pressure and increase my risk of a brain aneurysm or stroke (thanks google).

Not usually anxious about my health but i’m worried I shouldn’t be having head rush so frequently! And would normal head rush even affect hearing at all? It comes and goes with the swooshing pulsations…

More likely to be very low blood pressure, rather than high. Best to get blood pressure checked out.

I have the same thing, it's to do with low blood pressure. I just have to make sure I remember to sit up for 5 seconds from lying down, then stand slowly.

However, it would be best get it checked at your GP. All the best OP.

Thats a classic IIH symptom (I have it)

Are you on treatment for your IIH?

You need to get in to see your consultant as an urgent appointment as a sudden increase in symptoms would indicate an increase in pressure which could start to effect sight.

Mines low blood pressure and I get exactly this, or if I bend over I literally can't see for a few seconds as my vision is so disturbed

thanks all.

@Rainbowsandrainclouds1 I had a lumbar puncture about 2 years ago (but had the condition for a handful of years prior) and eye sight hasn’t worsened in that time and still no other changes either.

I am overdue a check with my neurologist so I’ll book that in.

what treatment do you have for it? I don’t suffer badly from it to be honest and it was only picked up during an eye test! Never had head rush like this so perhaps it is worsening. Thanks for the heads up

@Headrushh

For the first 15 years diamox and topiromate interspliced with periods of remission.

Following a massive relapse and near loss of eyesight I've been shunted.

But yeah, sounds typical IIH.

I asked ChatGPT4 and here is what it said in case useful

I'm sorry to hear about the symptoms you're experiencing. Given your diagnosis of Idiopathic Intracranial Hypertension (IIH), it's particularly important to monitor any new or worsening symptoms closely. IIH, previously known as pseudotumor cerebri, is a condition where there is increased cerebrospinal fluid pressure in the absence of a tumor or other diseases.

A few things to consider:

1. *IIH and Symptoms*: The symptoms of IIH can vary from person to person, but common symptoms include headache, visual disturbances, pulsatile tinnitus (a whooshing sound in the ears), and more. Any changes or new symptoms should be discussed with your neurologist or primary care doctor.

1. *Orthostatic Hypotension*: What you describe as a "head rush" upon standing is a symptom often associated with orthostatic (postural) hypotension. This is a form of low blood pressure that happens when you stand up from sitting or lying down. The sensation can be accompanied by dizziness or lightheadedness, and sometimes, as you described, altered hearing or a "swooshing" sound.

1. *Blood Pressure Concerns*: While orthostatic hypotension typically involves a drop in blood pressure upon standing, it's still a good idea to monitor your blood pressure regularly, especially if you have concerns.

1. *Anxiety and Googling Symptoms*: Googling medical symptoms can often lead to increased anxiety. It's essential to discuss any new or concerning symptoms with a healthcare professional who can provide a more accurate assessment based on your medical history.

1. *Hearing Changes*: Any changes in hearing, especially if associated with other symptoms, should be evaluated. Pulsatile tinnitus can sometimes be associated with IIH, but it's essential to differentiate it from other causes.

1. *Frequency of Symptoms*: If you are experiencing these symptoms frequently or if they are worsening, it's crucial to see a healthcare professional soon.

It's important to get in touch with your neurologist or primary care provider to discuss these new symptoms. Given your diagnosis of IIH, it's particularly essential to ensure that your symptoms are well-managed and any new developments are addressed promptly.