I've been diagnosed with advanced Lyme disease

[fabmaccawhackyrhumbsaloft]

For two years I've been absolutely struggling with a raft of unexplained problems that have severely hampered my quality of life

Today I had an appointment with a consultant who took an hour and a half with me , was brilliant, and told me I have Lyme disease

I tested positive for the antibodies associated with the condition

It explains all my debilitating symptoms

He told me not to google as he said there are conspiracy theorists and it's a political hot potato

I've been getting progressively worse and it appears the bacteria is in my brain, and nervous system,

Has anyone else had untreated Lyme disease and made a good recovery?

I do not recall being bitten by a tick but I have dogs and I'm guessing I was bitten on a walk

I thought ticks were big but apparently they can be minute and not something I'd necessarily notice and I've never had a rash but the bloods and lumbar puncture have confirmed the diagnosis

I've had debilitating inflammatory arthritis, heart issues , brain issues and problems with an eye resulting in the loss of fields

I'm looking for success stories please !

Its advanced and I've read that some damage can be permanent.
Im starting treatment tomorrow

The moment I try and do anything normal my joints swell

It's beyond frustrating. I was hoping he treatment might curtail this inflammatory reaction but seems not

It may take some time after the treatment is over for things to calm down.

I'm so glad you're getting treatment. Who is the consultant you saw ? Would be good to have details of someone reputable. Hope you're doing better x

We spend a lot of time in our local forest which is full of deer and get ticks fairly often

wishing you the very best OP, I have to confess I was a bit of a disbeliever so it’s sobering to read about your issues x

@mycoffeecup
Apologies for the thread resurrection and slight derail...
You mentioned that the Breakspear clinic is possibly dodgy in terms of Lyme testing - is there anywhere private that you know of that is legit? I need to get my 18 yr old DS tested, and god only knows what the NHS waiting list will be.

I don't know anywhere, sorry, but would suggest an infectious diseases consultant at the private wing of any NHS hospital, rather than a stand-alone place.