I'm trying not to Google to much .
Basically after months and months (20 months now) of inexplicable symptoms , culminating in the loss of sight in my right eye , I have been diagnosed with tuberculosis of the spine, which is affecting my brain function.
I've been battling to get a doctor to take me seriously but after losing my
Sight I saw a brilliant neurologist who had a diagnosis within 5 days.
I have no idea how, when or where I've contracted TB but it's spread from the lungs now into spinal column. Im not infectious. I have never lived abroad, dont eat anything unusual, the only
Place I can think I've come into
Contact with it is work .
It's affected my joints to the point I can hardly walk , and the sight went in my eye 2 weeks ago . I've become slowly completely disabled.
Now the good news is apparently this is treatable but maybe not the underlying damage .
I'm going to be given 9 months of treatment and I'm now under a specialist infectious diseases consultant.
Has anyone ever known this - what was the outcome ? It is different to having tb of the lungs . As far as I can see the treatment is chemotherapy/ possible surgery and long term drugs but I'll clarify that when I'm back in hospital.
I can't find much around prognosis. It's very rare in the uk. Obviously I'll be asking questions when I'm back at hospital, but I was so shocked I dont think my brain was able to process and I was whipped straight in for a lumbar puncture. I've already tested positive. The LP will confirm and I'm back in hospital next week .
I'm slightly panicking as I live alone and no pay = no rent .