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IBS-C sufferers - do I have symptoms like yours?

28 replies

zooopta · 20/07/2023 15:09

I think this might fit
I'm searching to see if others with the IBS-C diagnosis experience the same as me or if I need to look into something else

I have these daily stomach attacks with constipation and my quality of life is shit. I am close to tears a few times a day when it flares. I can’t wear clothes anymore as any waistband is makes me swell in agony so I just don’t go out and wear my nightie at home. I am feeling depressed now being only 29 with a toddler I can’t enjoy most days with
Really hoping to find some wise MNers who recognise these symptoms and can help me.

TLDR - can't pass gas build up, can't go to the toilet naturally, have lost a lot of weight, no appetite any more and constant constipation that never clears on its own all tests 'normal' or 'negative'

I avoid onion entirely since July 2021. Since pregnancy I can't digest it at all and suffer miserably for days if I've eaten something with even a trace of it in a sauce. But when I haven't I am still not right so.... I just don't know anymore

It starts in the morning like a hungry belly that won't rumble. Similar feeling as indigestion with back pain. I will grab my stomach and actually roar the pain away before it leads to
• A headache like my head is being squeezed and I can't focus on anything else while that's happening
• A build up of gas in my stomach and back that won't come out (no farts) although I can occasionally do a couple of burps
• feel full from my throat to bellow my bellybutton that makes me feel nauseous until I can burp
•Feeling like my belly is being squeezed from the sides into the middle
• the 'attack' in my stomach feels like my insides are being twisted
• I go to the toilet 1 or 2 times a week but it doesn't feel natural and I still feel full of stool after going. My bowels never feel empty and I often have to (sorry TMI) push from inside my vagina to get stuck stool out
• I will waddle like a heavily pregnant woman after going to the toilet as I am still constipated, uncomfortable and feel heavy low down
• Really sleepy after an unsuccessful bowel movement (starts/stops) and feels like the stool is low in my bum
•Have lost quite a bit of weight due to not eating (through fear it will trigger it getting worse) and now the lowest weight I have been in my 20’s (9st1lb I’m 5’8”)
•I co-sleep with ds and the noises from my stomach wake him up when I’m lying down
•I’m either barely sleeping or suddenly sleeping too much but still tired. It’s making me feel like I’m close to tears (the stress of feeling so shit won’t be helping)
•I can’t lie on my right at all. Only my left or I get a stretching/ripping pain from

The GP has given me a few things to try to clear constipation but hasn't said why my body is suddenly not working or accepting any food. Why can I not pass gas? I feel like this is a big part of the problem

Morning and evening I take a fybogel sachet.
I was given sennosides 7.5mg to take 2 at night (was taking these daily until I had 3 large bowel movements within 14 days and finally felt empty) but read these should only be 3 days use so stopped 2 weeks ago
I’ve given myself a big dose of lactulose a few times
Omeprazole 20mg I am desperate for around 6 times a day
Hope somebody recognises this as IBS-C or something else?

Just to add - don’t think it’s related but haven’t had a period since conceiving ds in Jan 2021 so when I got to the gp in the beginning I was convinced the bulges and heaviness in my vagina was to do with my ovaries, womb or from pregnancy. Emergency internal and abdomen US ruled out any issues but said I should be checked for prolapse which I did and was fine. They also said I had a full bowel which was surprising to me as I had been to the toilet that day and didn’t feel like I needed. And that’s when gp started me on constipation meds saying the pushing of stool could have been why it felt like my insides were going to fall out
•Also have a haemorrhoid that has never gone away since giving birth and probably some internal too but have been doing suppositories so shouldn't be that?

Urine, stool and blood tests all ‘normal’

Thank you for anyone who got to the end of this xx

OP posts:
whatabeautifulwedding · 21/07/2023 17:57

MotherOfCatBoy · 21/07/2023 16:06

OP I can’t comment on why you need those drugs for back pain but they sound like bad news to me. I’m convinced that sadly, although sometimes drugs are definitely needed temporarily, if you get stuck on them, all sorts of things in the body go out of whack. We evolved to eat a mainly plant based diet, drink mainly water, with hardly any sugar, and to move A LOT. I think walking is the cure for a hell of a lot of things and can do no harm to the rest. I’d start by walking 5k a day and then build up to more than that - maybe one in the morning to see if it shifts things along and then one in the evening after dinner. Drink loads of water (but not to bloating level - judge by your urine colour, pale straw is what you’re aiming for). Try to gently wean yourself off the pain drugs. Go gently and gradually on yourself. Throw in a bit of gentle yoga at home if you can - Adriene on YouTube is free and accessible - you don’t have to be bendy. Yoga with gentle twists and knees up to chest, on the floor, I’d known to be good for digestion.
Try these things, they can’t hurt, and might restore your natural rhythms bit by bit.
On menstruation - unless you are breastfeeding, your periods should have returned - maybe it is because your body thinks it’s under nourished? You had better ask GP for an endocrine specialist.

I second yoga.

Sarah Beth Yoga on YouTube also very good (and very easy for beginners). She has a video specifically for digestion.

rileynexttime · 21/07/2023 19:01

I hope you can get things improved soon OP. What is your GP like ? It seems wrong to me that they prescribed you so much omeprazole . And not properly discussed things with you .
You said that they were happy to go along with your suggestions re meds (if I understood you correctly) and that also seems a bit of an abrogation of responsibility.

34andchildfree · 15/08/2023 19:13

I could have written this myself, got diagnosed with mild crohns at 18, then ulcerative colitis at 24, they still don't know, anyway didnt really have any symptons just going toilet like 15 times a day.... fast forward 15 years and its the complete opposite,I think I have ibs-c, it is horrendous, I havent had a normal BM in forever let alone a formed 💩 tmi sorry.. butmy doctor told me not to use laxatives everyday which was helping at the time so spoke to my gastro nurse and she said its fine, it does more harm being in your body, she said to alternate between dulcolax and senna every 6 weeks. She said doctors don't know much about gastro and just tell you what it says on the packaging...
Unfortunately for me mine just isn't getting better and I'm in so much pain especially down my back.
I have tried every thing going, the only relief I have at the minute is suppositries.
If I were you and the laxatives are working, stick to it and tell your gp that its the only way, they will probably refer you, although yours sounds just as shit as mine, il put a request in for something ive read online and its in the chemist ready for collection within a few days! 😑

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