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Gp advice about lymph nodes - any gps agree??

34 replies

Lkakpk · 19/07/2023 17:48

So , a bit of context . I’m early 30s relatively slim no known health issues . Just after Christmas noticed a swollen gland in neck . Went to docs and referred for ultrasound . Doctor said it was mildly swollen but still referred me - had ultrasound - doctor said node was prominent but benign features - ie reactive node . He also said I had a tiny thyroid nodule - but that it was entirely normal and of no consequence health wise .
Few weeks later I discovered swollen gland under arm , again went to gp and was referred to breast clinic who found a few nodes - again , told reactive nodes - I asked ultrasound lady if they were big - she shrugged and said not really - not serious .

anyway , it’s now been months and all glands mentioned are still swollen . The underarm one seems to have enlarged so I went back ti gp . After firstly not being able to find it he found it - said if it has been checked should be fine ?!
Surely if it has gone bigger it should be re examined with ultra sound ?
I also asked him if it weird to have these glands without no history of illness he said it’s mostly following illness and normally would go down ? Mine hasn’t and yet only further investigations he is performing is more blood tests and that’s only due to me saying I feel generally fatigued and run down .
Should I be questioning his advice on just leaving the nodes ? Is this a common thing in gp world ? Any advice would be great !

OP posts:
waterlego · 22/07/2023 07:58

@Lkakpk, yes they don’t explain why they aren’t concerned but I wonder if it’s just a case of eliminating scary things, ie, they don’t really know why the node hasn’t gone down, but unless the patient has unexplained weight loss/other symptoms or worrying blood test results then they have to deduce it is ‘just one of those things’ 🤷🏼‍♀️

isitnearlytime · 22/07/2023 11:02

ReadRum · 21/07/2023 19:49

I can’t work out from your post where the new lump is but consider mastoiditis if it’s behind the ear

@ReadRum I don't think it's that. It's lower down towards the back amongst the stubble of his new short hair cut. It may have been there before not noticeable as covered by hair. You can only see it if he turns his head in a certain way (I noticed when I was helping him put ear drops in and he tilted his head towards the light). Actually wonder if it's just muscle sticking out. As I mentioned DS is naturally very skinny (think Rodney Trotter) and his muscles, bones, veins and the aforementioned glands are quite visible through the skin as opposed to people with more padding!

He had his ears checked yesterday and they removed LOADS of wax but no infection AFAIK. They said his left ear was also a bit scarred and he needs to go back and have them rechecked next week.

isitnearlytime · 25/07/2023 07:28

Lkakpk · 21/07/2023 20:54

@isitnearlytime I think you are right . When you consult Dr Google it’s pretty black and white - cancer or infection and if there is no infection it’s easy to go down the lymphoma fear rabbit hole . I also feel like gps are slightly cagey about nodes - as if they don’t want you to ever ignore one so instead of explaining why they aren’t concerned ( as previous posters have said some people just have them come and not go down ) they would rather kind of leave it with a question mark incase you ignore a change or another node that pops up

Dr Google is black & white with quite a few things I feel, causing panic. Then, when you mention to the GP they're like "err that's normal".....

GreenMarigold · 25/07/2023 07:34

My daughter had an enlarged lymph node in her neck last winter. It was pretty prominent, definitely bigger than pea size.

The doctor wasn’t concerned but did blood tests just in case (which were clear) and said to come back if it was still there in 6 weeks.

It was, so we went back and she shrugged and just said that’s how it is. It finally went away after about 4 months.

NeverDropYourMooncup · 25/07/2023 07:41

The one in my neck finally went down about a year ago. It's was scanned and found to be normal in 2017. Just checked and I can still feel it, it's just not as prominent as it was and is more like the ones under my jawline.

I can also see DP's on his head (he's bald) from time to time.

isitnearlytime · 25/07/2023 08:47

Noticed one in son's neck Summer 2017. Had a feel around my own neck at the same time and found a non visible one too. Thought it had almost gone recently but have been prodding so can feel it again. Showed it to GP in passing last year who was unconcerned and said "that's reassuring" when I said it had been there 5 years. Son's wasn't checked out by ultrasound until last year, along with a couple of others he has. All normal. They're still there unchanged. As I posted upthread, I think I can see a new one since his hair was cut short at the back. Not sure whether to bother GP with it if still there in a few weeks as presume normal for him? I'm also struggling to see it now as hair is starting to grow!

Worridoncemore · 25/07/2023 18:29

I agree Google isn't very reassuring when it comes to lymph nodes - nowhere does it say ones that stay up are normal. Extra scary when you have health anxiety. Son, DH and myself all have ones that have been up for years. A couple of DS'S are visible. Have been checked but every so often I do have a wobble about them.

SofiaAmes · 25/07/2023 18:45

If you (the GP) has concluded that it's not cancer, I would have thought that it's still important to figure out what's causing the prolonged lymph inflammation. Is it some underlying viral infection that can be treated with a better diet, more rest etc. or is there some underlying infection elsewhere in the body...bug bite?, tick bite?, gastro infection? that needs to be treated. You can do a self-assessment of your own history to maybe figure out what else might be going on. I have found that I get better attention from doctors, if I have an educated idea of what might be wrong with me and some science literature showing potential treatments. And/or a list of everything I have tried so far.

Toddlerteaplease · 25/07/2023 23:18

I had one in my neck following glandular fever. It took about 10 years to go down!

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