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Original poster

I feel so stupid

13 replies

mariam12344 · 05/07/2023 06:24

I have been having horrible symptoms since January this year so it has almost been 6-7 months. The symptoms include weakness, numbness and pins and needles in the left side of my body. Also having pain in both my wrists where they literally feel fractured. Have a burning sensation in my lower back and groin (like lightening crotch). So I suspect I may have MS or something similar. I went to A&E the other day with severe weakness as I could barely move my arms and legs. I was sent home as they saw on my notes that I am already under the care of neurology and have an upcoming MRI scheduled for two months time. I waited a few more days and the symptoms have got a lot worse so I went back to A&E but thought the only way they will further investigate is if I over exaggerate my symptoms. I basically tried to make it out that I had loss of vision and left sided numbness and the drs ended up saying it's a hemiplegic migraine and sent me home with a follow up with neurology in a weeks time. Now I feel stupid to have lied about losing my sight and left sided numbness because it has just been put down as migraine related. Do I be honest with the neurologist and let him know I lied about losing my sight and numbness just to get seen? I feel so stupid Confused

OP posts:
78Summer · 05/07/2023 06:29

I think you have to be honest as you need the consultant to have the exact correct symptoms. Just explain you were desperate to be further investigated.

Original poster
mariam12344 · 05/07/2023 06:36

I feel really embarrassed as the neurologist will now think I'm a liar 😭

OP posts:
SaltyCrisps · 05/07/2023 19:44

Try not to stress about it, OP Flowers

Definitely what you need to do now is to be honest with the neurologist, though, as otherwise they're not going to be able to help you. If I were you I'd just explain what has been happening, and how worried you've been, and tell them that at the hospital in desperation you couldn't help exaggerating a bit to try to get some help.

I promise they'll have heard much worse than this. We all have. In an ideal world you wouldn't have felt a need to exaggerate, but when we're desperate and running out of mental resources we're all capable of doing things we wouldn't normally do. You've not gone out and hurt anybody, or stolen. You just over-egged the pudding a bit to try to get some help.

Tell the neurologist what happened and they'll then try to help you. Please come back and let us know how you get on.

Original poster
mariam12344 · 05/07/2023 20:07

@SaltyCrisps I had an appointment with the neurologist this morning. My partner and family told me not to say I was lying as they won't treat me serious then. The neurologist said he's diagnosing me with FND. Now, I'm not too sure how much to accept this diagnosis?

OP posts:
saltrocking · 05/07/2023 20:09

mariam12344 · 05/07/2023 20:07

@SaltyCrisps I had an appointment with the neurologist this morning. My partner and family told me not to say I was lying as they won't treat me serious then. The neurologist said he's diagnosing me with FND. Now, I'm not too sure how much to accept this diagnosis?

So you've not yet had an mri?

Rowgtfc72 · 05/07/2023 20:10

My brothers just been diagnosed with FND after years of assuming he had something worse.
There are a couple of Facebook groups out there but even his doctor admits she doesn't know much about it.

Original poster
mariam12344 · 05/07/2023 20:13

@SaltyCrisps They are going to do an MRI of the spine , nerve conduction test, and I'm going to be seen by a rheumatologist. However, in the meantime he has said I have FMD

OP posts:
saltrocking · 05/07/2023 20:16

I'm very glad they are still going ahead with the mri. I was diagnosed with FND after I developed numbness, vertigo and bladder issues. My gp pushed for a contrast mri and I was diagnosed with MS. I was literally treated like a middle aged neurotic woman by the neurologist. In reality I was absolutely panicked after years of on off symptoms. I was naturally going to be suffering from anxiety.

Best of luck x

Original poster
mariam12344 · 05/07/2023 20:19

I'm so sorry to hear! How long did it take to get the MS diagnosis?

OP posts:
saltrocking · 05/07/2023 20:22

I had vertigo on and off for five years. But numbness and bladder issues in the final year before I was diagnosed two years ago. If there's anything it will show on the mri. Try not to worry, easier said than done I know x

Original poster
mariam12344 · 05/07/2023 20:23

How many MRI scans did you have before diagnosis?

OP posts:
saltrocking · 05/07/2023 20:28

Just the one, with dye contrast. I'd had a CT scan before that showed nothing abnormal. I too had been told I was having hemiplegic and vestibular migraines. Im just very grateful I had a gp who was supportive x

Abs811 · 09/10/2023 22:41

@mariam12344 did you ever get to the bottom of this? I'm having similar issues

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